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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 4 hours ago | Replies (7067)Comment receiving replies
Well it started 2 years ago when I broke my ankle. My orthopedic surgeon kept saying it was healing great according to the xrays, but it was still very swollen and had a purple and blue tone, and it hurt like hell if any one touched it. He happened to know another orthopedic surgeon who studied complex regional pain syndrome at Jefferson Hospital. But now worked with the Rothman clinic. My doctor actually drove me 2 the other office to show the other doctor my foot. He immediately was like it looks like you have C.R.P.S. . Symptoms are severe pain in an appendage after you've broken or sprained something. It also turns bluish and purple. The pain is unreal. They call the skin " mermaid " skin.
Replies to "Well it started 2 years ago when I broke my ankle. My orthopedic surgeon kept saying..."
Sorry I didn't finish last night I go to therapy once a week for someone who doesn't live with all my crap every day. The crps also jumped into my arm it was horrible. I was in so much pain. So to be diagnosed although I already was, for spinal implant surgery you have to see a neurologist, rheumatologist, 2 psychiatrists and a pain management specialist. So you can get the stimulator that's crazy ...lol. it works a on both arms and hands. There is a generator in my but that send electromagnetic signals to my spine. Its saved my hand. But it's not curable and it jumps from different parts of your body. It might, it might not. Stress and weather play a huge part in how I feel each day!! Keep your spirtsup!
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Wow! Sounds terrible. But it does help to have a diagnosis. For me, when no one can tell me difinitively what the beejeebers is going on, I tend to obssess. At least I can be proactive if I know what's going on.
11 months in a boot is a very long time! Swelling and pain must have been hard to deal with!
My son, almost one year ago had a terrible scaffolding accident. His worst injury was crushing, literally, both bones in lower right leg. Trauma team did immediate surgery to drain blood and fluids. Put him in a contraption that was both inside and outside held in place with metal to keep foot from flopping. He had to wait 4 weeks for the big fixit surgery. The surgeons choose to rebuild the leg rather than amputate. Thank God. At ankle and knee there was large bone fragments they could attach rods and screws to. He spent 5 months in a hospital bed at home. Then, incrementally he increased time spent upright. Seems he would have been a perfect candidate for CRPS. Been almost a year and he is just now getting back to work. Got married on crutches. He ran his own business, so he can limit type of work he takes on.
Is CRPS an auto-immune condition? Like rheumatoid? Son will never regain ROM, but is just thankful to have his leg. Hopefully the healing continues.
Strange how your poor skin is affected. Son's leg is still swollen and purplish. But skin seems ok, so that's good. How is your ankle now, or are you doomed to pain for the long haul?
If I'm being a pain, do not worry, I am just curious and am trying to understand what CRPS patients deal with....not add to your pain 😉 I won't be offended if you don't reply. God bless.