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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 16 hours ago | Replies (7049)

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@skippyr

This is my first post. I’ve had rectal pain non stop for seven years. It started after having a BCIR surgery. That is an internal bag for waste made out of small intestine so it can be emptied using a catheter. My rectum was removed forty years ago due to ulcerative colitis. I had illiosmy for two years then a Koch Pouch which is similar to the BCIR. It lasted for many years until 2000 with the valve failed and started leaking. The rectal pain is unrelenting and feels like a hot jagged post twisting and poking into my backside. I’ve tried everything from a hysterectomy to a spinal laminectomy to every kind of injections you can think of. I’ve recently received a DRG Stimulator that goes under the tailbone. It is the first thing to give any marked relief but the pain is still such that my life is very restricted. Has anyone ever heard of a intrathecal pump for pain in this area?

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Replies to "This is my first post. I’ve had rectal pain non stop for seven years. It started..."

@skiippyr...Sure sounds like you have suffered terrible indignities with your condition. Hugs. These darn bodies sure do betray us in some of the most awful ways. Wow, I didn't even know they did such surgeries 40 years ago, and glad they did, for your sake! Can not begin to imagine the pain and discomfort you are forced to endure. Do you have "good" days, or are things the same everyday? What do they attribute this condition to? What brought it on? If you don't mind me asking.

@skippyr....what is BCIR surgery? Never heard that before. And what is a spinal laminectomy. Thanks.

@skippyr I don't have any experience with your condition, but I do know that surgeries cause internal scar tissue in the fascia. Possibly, myofascial release physical therapy could help that. Here is some information I collected about MFR that you may be interested in. https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/