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Stage four high-grade neuroendocrine carcinoma

Lung Cancer | Last Active: Dec 18, 2023 | Replies (9)

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@colleenyoung

Here's more information about submitting a request for a second opinion at Mayo Clinic http://mayocl.in/http://mayocl.in/1mtmR63.

Let me also get you connected with other members who have experience with neuroendocrine tumors of the lung that have spread like @californiazebra @pattirushing @aliatl @tufan @bluedane @sylvian @dak10 @mimmy @ce1b

While we wait for others to join in, you might also be interested in this related discussion:
- Newly diagnosed-Primary Malignant Neuroendocrine of Lung
https://connect.mayoclinic.org/discussion/newly-diagnosed-primary-malignant-neuroendocrine-of-lung/
You and your husband have been through a lot. How are you holding up?

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Replies to "Here's more information about submitting a request for a second opinion at Mayo Clinic http://mayocl.in/http://mayocl.in/1mtmR63. Let..."

It’s hard! I am a woman of God, and I am trusting my Lord and Savior! He has brought us this far, and I feel that He is leading me to look for actually a specialist for my husband. Thank you for asking.

@clintwlively
I’m so sorry to hear about your husband’s neuroendocrine carcinoids that are now metastatic. It sounds like he has the atypical aggressive form. I have the slow growing typical carcinoids that luckily haven’t spread so far (it’s my breast cancer that spread) so I’m afraid I don’t have any related advice. I’m praying he finds the right specialist and gets some relief soon.