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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: 15 hours ago | Replies (324)
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@littlecactus

Hello, I m a 31 years old person who have been struggling for over a year now and diagnosed with a CLIPPERS syndrom arround six month ago after a biopsy. I’m doing my best but it has begun to be quite difficult. I was looking to connect with people who could understand this « new life » when I discovered this wonderful post. Anyone up for a conversation? 🙂

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Replies to "Hello, I m a 31 years old person who have been struggling for over a year..."
menel | @menel | Dec 20, 2023

Hi, this forum was very helpful to me also, as CLIPPERS is so rare and few doctors know about it. I was initially diagnosed with MS, and more that 2 years later correctly diagnosed with CLIPPERS.

If you do not mind, kindly share your symptoms with us, or privately, then we can try to provide support? Symptoms differ much between patients - diplopia is my only symptom.

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Ame | @astanko | Jan 14, 2024

Hi. I am! Sorry, I didn’t respond sooner, I just saw this.

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