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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 18 hours ago | Replies (7049)

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@tdib

@liz223 , thank you for the welcome. I've had fibromyalgia 20+yrs. I has been real bad the last 8 or so yrs. It's everyday , bad most days . But I've recently been put on a med. that seems to be causing several side effects, one being headaches increase in stiffness and muscle spasms. Life's never been harder . If have the support of my sweetheart but my new difficulties are straining our close relationship. I have no other supporting people in my life . The thought of losing him because of these things has become an all consuming fear. I can't get back to where I was when I was at least coping with my pain and other issues. I need help but have not found it from my medical professionals. I don't know what to do to help myself. Feel everything slipping away. He gets upset to hear my weakness spoken out loud. . So thinks for giving me a place I can speak honestly. GOOD luck to each of you with you struggles.

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Replies to "@liz223 , thank you for the welcome. I've had fibromyalgia 20+yrs. I has been real bad..."

@tdib
Welcome!
I am so sorry for what you are going through physically and now emotionally! It is never easy when one partner has a chronic condition and the other partner has to watch and help.
I've known my hubby since I've been 9, together since I've been 14 and married 45 years. I've had Fibromyalgia even longer than you, before most people even knew what it was. I've also had other chronic situations with my health. Even now, I've got physical issues that I've been dealing with for about 10 years. For sure, he has had to deal with the harder part of our relationship. And, when you have been together as long as we have, lots happens. When we get together with someone, we never know what the future will hold, but when you love someone, you need to take the good with the bad; it is not as if we want these things to go wrong. Have you tried to sit down with your sweetheart to have a heart to heart?
In the meanwhile, let me share what I did to help me with my symptoms. First, my doctor put me on a mild med to help me get into a deep sleep. Most people with Fibro do not get into the deep restorative sleep, which we need for our bodies to heal from the day. I fought taking this for years since I did not like taking anything more than aspirin. But I relented and it helped a lot. Next, I went on a diet. I lost about 25 pounds and that helped with the excess pressure on my joints (I still needed to lose more, but that amount helped). Lastly, I started to exercise. I know, there are days even getting out of bed hurts. I started my 'exercise' by just walking. I found a path to walk. Each night my hubby and I would walk. Halfway through, my husband would literally drag me to the end. Eventually, I was able to do it myself. I did NOT speed walk, just walk. Once I was able to walk, I started going into the gym and using the treadmill and then other equipment. It took time, but soon all my symptoms were gone. That, my friend, was more than 20 years ago. Now, the only time I have pain from the Fibro is if someone gets into my trigger points.
Hope this helps.
Ronnie (GRANDMAr)

@liz223 Hi liz welcome to our caring group. Ive had fibromyalgia for over 30 + years we that have it all know how you feel. Dr. had be on all the fibro meds know of them helped and on 2 had side effects, so started to research elsewhere. A fibro group said that med. research stated we need more magnesium I take 600mg a day and my ct is still within the limits , Also when I hurt I use Ice ,heat , Tens unit when my muscles are tight . I love my Tens unit. light exercise is good it may hurt but does help your muscles. I had 11 of 18 pressure points and nothing helps them . This is hard for sure. The other thing is learn to say No to things that hurt you. Be kind to yourself. We here learn from each other . hope you have a good day