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Ataxia

Brain & Nervous System | Last Active: Feb 28 3:42pm | Replies (67)

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@42ddg3d

I want to thank you for gracefully explain what I have been going thru for the past two and half years. Doctor after Doctor, specialist, neurologists, neuro-ophthalmologists, different types of therapies. I have dropped the Doctors that basically said it is what it is, except it. Just seems to be snowballing into many other issues. The prescription issue i have addressed the best i can with the Doctor's and Pharmacists thru my in insurance carrier, they are great.

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Replies to "I want to thank you for gracefully explain what I have been going thru for the..."

I appreciate your kind words, and I am glad that what I posted was of value to you. As with you, I have indeed heard the words "Accept it, and learn to live with it." Also: "Just go on with your life, don't concentrate on what you think is keeping you from doing what you want to do." Those last words came from the foot orthopedist who failed to acknowledge that I did indeed have more going on in my ankle than "just tissue damage." Because of him and his "Let's give it another six weeks" comment every time I went back for a followup appointment, my ankle issue were denied an MRI. After leaving him (when he said those ignorant words at my last visit), I had a three month wait to be seen by a highly sought after neurologist in a different medical group. That doctor took one look at my ankle and said that he observed a degree of swelling (a whole year after the fall!) and ordered the MRI that the orthopedist had kept denying. The MRI revealed the evidence that supported all my complaints of pain. Subsequently, he referred me to a foot orthopedist in private practice, and he confirmed what was already diagnosed, gave me injections into both sides of the ankle, and ordered an MRI of the toe bed (which revealed three nasty neuromas). PT for the foot followed, for several months, from October to the following spring, but pain still persisted and even expanded. That's when the neurologist diagnosed Complex Regional Pain Syndrome. There's more to this, but I'll end by saying that it was such a relief to have had doctors who actually believed my pain and sought to HELP rather than deny and be dismissive. Having had so much time transpire without having gotten the appropriate medical attention in the first place by that arrogant foot orthopedist definitely contributed to the intensity of my condition. I have a very hard time trying to deal with that. I may well have had a much different situation right now.