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@grandmar

@JustinMcClanahan
Hi!
I just read @seanivor post and your reply. I found it very interesting and I followed the link you provided as well as other links in other areas.
I've had many issues with my spine for which I have had 2 surgeries this year. Thank goodness the chronic pain I lived with for 10+ years are gone. Last summer, before my 2nd surgery, I found that I could not move my foot from left to right or raise my toes when my right foot was flat. My toes were also numb. My right foot was OK although it did not move normally. My surgeon did not know if it was coming from my lumbar issues, but the problem did not get any better after my surgery. I've had many tests including blood, x-ray, MRI, mylogram (ouch!!!), EEG for the nerves, and some sort of ultrasounds by a vascular surgeon. Nothing was definitive.
My neurosurgeon is perplexed and sent me to a neurologist. Upon a thorough exam, she ordered more blood work and another EEG (EMG???). I go tomorrow.
I do have osteo-arthritis and fibromyalgia. Until I read the info about small-fiber neuropothy I thought that some of the things that has been happening to me was just my body breaking down or getting older (just turned 64 this week). Anyway, I have dry eyes, dry mouth, I get itches in my feet and/or toes that I feel like I cannot scratch hard enough to reach it, I get shooting pains in in feet that do not last more than a little while (I attritubted it to spasms), I do not sleep well at all (I am lucky to get 3-4 hours and that is NOT straight through), no bladder or bowel issues (except constipation), I cannot stand in one spot for long, I fall, on occasions, I do get dizzy and so on. The info talked about being diabetic or pre-diabetic. Two years ago, I was pre-diabetic. I had weight loss surgery and lost between 80-90 pounds (depending on the day) and all my blood levels were perfect. Except.....when the neurologist checked my blood, my thyroid was EXTREMEMLY LOW. For years and years, even before my weight loss, I had a slow thyroid, but with meds, it has been fine AND I just had blood work about 4 months ago and it was fine. This becomes more interesting!!!!
I've copied some of the things I read and will bring it up to the doc. It is not something I WANT, but I think it is something that needs to be looked into.

Sorry for going on and on....
Ronnie (GRANDMAr)

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Replies to "@JustinMcClanahan Hi! I just read @seanivor post and your reply. I found it very interesting and..."

Have you been screened for Sjögren’s? Your symptoms sound familiar (I have this auto immune disorder). Sjögren’s is very under diagnosed, often labeled as fibromyalgia.

This group is dedicated to Sjögren’s Patients. Started by an MD who has Sjögren’s.

https://www.smartpatients.com

You might find some help here. Good luck!