Repeat lumpectomy? And treatment decisions. Need advice
Just had lumpectomy Dec 1. Pathology report was: positive margin on the posterior edge DCIS Micropapillary Grade 2. My surgeon called me yesterday for re-excision or another lumpectomy. I was hesitant to do it since I am a single mom and I was so difficult for me and my teens . Today he said he present my case to the tumor board to help me decide. Any suggestions? Did my surgeon messed up and missed the rest of the cancer cells? Or he just didn’t see the cancer with his naked eye just what he told me? What is the percentage that second surgery will be successful. ? After this , my oncologist said I will have radiation and hormone therapy for 5 years since my ER is positive. I need help in decision making please.
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If I will do the second surgery ( waiting for the recommendation from the tumor board or I can just tell my surgeon I am ok with the second one instead of waiting for the tumor board presentation) 2 months after that. So looking maybe last week of February or March) not sure. But oncologist said , I need to be totally healed from the surgery before we start the radiation.
@kikay
Both my Medical oncologist and my Radiation oncologist told me that having the re-excision and then the radiation would give me the best chance for it not to return. Your DCIS seems similar to mine and if you have positive margins I would think your best bet would be to have the surgery and pray they get it all and then do the radiation. But you have to do what you feel is best for you. I will be praying for you!
I thought that anything "cut out" of our bodies is examined by pathology. That is how they know that the margins are good or not. My hospital is able to examine the tumor while I was in the operating room.
I wish you well in your decisions
I had a lumpectomy for invasive DCIS and the surgeon did not get clear margins. I had the second surgery as I wanted to do everything to ensure that the cancer was gone. After surgery, I went through chemo and radiation, and I am on an AI for at least 5 years. That was my journey, and you need to do what is right for you. I wish you all the best.
I had a lumpectomy along with removal of 13 lymph nodes (cancer present in 7) on 1/3/2020. I had been on the hormone blocker Letrozole for 7 months prior and remained on it until starting chemo (because of the lymph node involvement.) My surgeon did not get clear margins, and so I had a 2nd lumpectomy on 1/31/2020. I began chemo a month later followed a month after that by radiation. I then resumed the Letrozole the day after finishing radiation. I suffered major fatigue during chemo, so perhaps I didn't notice; but I don't remember any significant fatigue from radiation. I actually walked to radiation on average of 4x a week to rebuild strength and balance
Thank you so much for the prayer and advice. I appreciate it.
Thank you for your input.
Thank you for sharing .
Thank you for sharing your story. I’m sorry to hear about it but I can tell you are a very strong person and that gave me so much encouragement. God bless.
Hi
I feel your pain. I am awaiting my pathology. Had a lompectomy, December 15. My DCI s was in situ. The surgeon told me that it's a difficult cancer to remove. Because it's not like you can see a tumor so they have to go buy the ultrasounds and MRI . I now wait for weeks for follow-up and pray. He got it all he took quite a bit. My breath was left intact but much smaller than my left. He told me I will have to have radiation possibly tamoxifen but that's a drug. I will not take. I wish you well with your outcome