Breast Pain/Swelling

Posted by mjay @mjay, Nov 11, 2021

I had treatment for lobular breast cancer two years ago that included a lumpectomy and radiation, which has caused residual tenderness and a disfigured nipple. I recently had a breast exam by my PCP, and the pressure really irritated the nipple and breast causing pain over two weeks now. I’m due for a MRI and mammogram this month. I am wondering if anyone else experienced this type of issue and whether it was some type of mastitis or ectasia or whether cancer returned to the same breast.
Thanks for your reply.

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@mitch3194

So thankful everything is okay for you. I too have swelling, pain, redness after a month. Occasional pain in the breast bone.
Mine all started when I felt a large lump at the end of summer, which I was unsure as it felt part of my chest wall. My Mom died from Breast Cancer at 63 and our daughter was diagnosed with Triple Negative Breast Cancer at 25 years old. I was scheduled for a Mammogram shortly after, and nothing showed up. I told the technician to feel and she confirmed it was a lump. Immediately, they scheduled an Ultrasound and the doctor said it looked like a small lump, a few mm's. I said that's weird because I am feeling something a lot larger. He scheduled me for an urgent biopsy. The doctor told me he was seeing a lump more like 1" in size and 2 lymph nodes looked suspicious. I said (2nd time) that's weird because I feel something a lot larger. The doctor asked me to show him the size with my fingers which I did about 2 1/2". Nothing was said. The pathologist's report came back and confirmed it was cancer. The Oncologist surgeon said that she recommended a lumpectomy rather than a mastectomy so that I could keep the "girls" and that it was a slow-moving cancer. I had the surgery about a month ago and just met with the surgeon. It turns out, they removed 29lymph nodes and a lump that was 3 1/2". and they were unable to get clear margins. I asked the doctor how it could be 3 1/2" and spread to 2 lymph nodes if it was slow moving. She said we think you have had it for 5-6 years. I was in such shock, the doctor said they would like to do a mastecomy asap and left, I just couldn't even think of what to ask next. When I got into the car, I had a major anxiety attack. I went from "a walk in the park" to the possibility (I am thinking) of a double mastectomy. I called the nurse with my questions, and she apologized and said that surgery had been postponed, and they would like me to meet with the oncologist to discuss treatment first.
My questions now are how deep was the lump, is the chest wall infected, and what the possibilities are that the cancer can travel to other breast and organs. Never once was I offered an MRI. So many thoughts are going through my brain right now. Am I on the right track? I am a realist - I want to know everything upfront so that I can make informed decisions and not be blindsided.

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When I was reading your story, it is similar to mine where no one could see the lump on imaging but I could show it to them because mine was anchored to the chest wall. I was also thinking the whole time I was reading, like Laurie @roch this poor woman needs to get to a comprehensive cancer center for a second opinion. Something I very much wish I had done.
Are you able to get to a large cancer center or maybe a teaching medical university for a second opinion? More importantly how are you feeling now that you are a few days out from the initial shock?

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I have done a lot of reading. Do I need the MRI now if I am considering a double mastecomy? Considering a 2nd opinion but you never know if you are going to get someone worse. The doctor seems like a nice lady but I wish she would have been more thorough.

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@roch

mitch3194 | @mitch3194

Wow, what an ordeal. When I was reading, I was also wondering why a MRI was never done.
See the oncologist to discuss total treatment plan is a good idea before seeing surgeon.

Not sure where you are being seen, but you may want to look at getting a 2nd opinion at another clinic.

Laurie

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being my first time and it was different for my daughter, yes seeing an oncologist first would have been the right approach. I think I would have asked for a MRI and treatment first before they went in. 2nd opinion is on my list.
Hope my experience helps others.

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@mitch3194

being my first time and it was different for my daughter, yes seeing an oncologist first would have been the right approach. I think I would have asked for a MRI and treatment first before they went in. 2nd opinion is on my list.
Hope my experience helps others.

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@mitch3194, I'd like join @roch and @auntieoakley in their suggestion to review your questions and discuss all treatment options with the oncologist. Between now and your appointment I would keep pen and paper handy and take note of all the questions whirling in your head, organize them and bring them to the appointment.

Some questions that come to mind in your situation include:
- What further imaging or other testing are required to get a full understanding of the cancer, its stage and spread and treatment recommendations?
- What treatment options are recommended?
- What are the benefits and side effects of each?
- Where would you recommend I get a second opinion?

Mitch, if Mayo Clinic is an option for you, here is how to request a second opinion http://mayocl.in/1mtmR63

When is your appointment with the oncologist? How are you doing?

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My Oncologist and Radiologist appointments are both this Friday. Thank you for all your suggestions. Yes, I plan on being prepared. 🤗

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