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Has anyone had MRI suspicious for malignancy but negative Mammo + US?
Breast Cancer | Last Active: Dec 22, 2023 | Replies (53)Comment receiving replies
Hello, thanks for your insightful comments. What is your advise for someone like me who had a preventative double mastectomy for LCIS 1 year ago? All the doctors, my surgeon, oncologist, primary md, tells me I don’t need to do routine scans anymore but to just feel for lumps. I feel that an MRI would be most effective in detecting abnormalities before it becomes later in stage. But act the same time, it has been only a year ago since my surgery and probably there is trauma to the tissue that will show up on the MRI that needs to be ruled out as non malignant. I am not sure if I am mentally ready to go through the stress again of waiting for biopsy results. Any advise is appreciated.
Replies to "Hello, thanks for your insightful comments. What is your advise for someone like me who had..."
I think you have to be your own advocate. You have a right to those tests the same as any other person. Early detection is everything. Not to mention piece of mind. Our daughter had a DMX, and an MRI for the next few years. She was 25 years old, she was diagnosed with triple negative.
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The long term surgical followup can certainly present uncertainties and it sounds like that is what you are feeling. By what means was your LCIS/lesion initially seen...MRI? Mammogram? One of the clear challenges with lobular lesions is the rate at which it is diagnosed late, often due to it not being clearly detected by radiology, particularly in women with dense breasts. With double mastectomy, it's helpful to know if all breast tissue was removed, if reconstruction was done, if the procedure was nipple sparing, etc. Your question about the use of MRI followup post-LCIS double mastectomy might be a good one to post in the community to see what others have experienced.