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Chronic Pain members - Welcome, please introduce yourself

Chronic Pain | Last Active: 13 hours ago | Replies (7067)

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@peggyella

Good morning, Ronnie. I’m so sorry about your loss. Truly. I know my husband, Barry, may die the next time he gets cancer. If not, he may have another hemorrhagic stroke and the neurologist said he’ll never survive another one like that. It was a miracle he survived the first one. He has a hole in the frontal lobe so his ability to handle his mood and anxiety are nil. I never know when I walk into the room what mood he will be in, I know God is using it to teach me more patience. I take care of him but he takes care of me as well. So I know you must miss your husband very much. It is hard to nurse someone with cancer.

Because God healed me from my abusive childhood, I have a passion to help other abused women. I also work with the homeless and most all of them have been abused, men and women. I am sponsoring a few women right now to guide them in the right direction to recovery. One of them nursed her husband with bone cancer for three years until he died. It put her over the edge and they found her on the sidewalk unable to tell the Deputy anything except, “my husband died.“ It is very sad.

Please forgive me because my memory is so bad… LOL… But did you write about having chronic pain? I can’t see the post. I’ve been in chronic pain from various sources for 49 years. I can’t say that you ever get used to it. I gave up on pain medicine a couple of years ago and told them to get me off of it. Because I was on the pump 10 years, I t took 11 months to wean me, but I’m glad that I did. Everything worked for a year or so, but eventually I needed more and then a different opiate.

I started out on morphine after few years it didn’t work anymore so they put me on snail venom. That worked until I started having audio hallucinations. I’m not kidding! I heard music all the time. I couldn’t make out any words but I could hear the instruments and voices in the background. No, I was not schizophrenic! LOL. It got so bad and so loud that one day I called my sweet neighbor and asked her if her teenagers were blasting a stereo. She said she was taking a nap and the kids weren’t home! Boy did I feel like an idiot. When I first told my doctor she said she had never read that but when she looked at blogs, lots of people complained about it.

So finally it was Dilaudid. When I had my last spinal surgery for degenerative disc disease, the lunatic surgeon cut the lead to my spine and I overdosed. He said it was an accident!!! My local pain management doctor and neurologist said that no surgeon accidentally cut the lead to the intrathecal pain pump. It was in his way and he was lazy. When I return from my follow-up visit I said to him, “Dr., you put me through hell.“ It didn’t go over too well. LOL. Like I would ever go back to him. For 12 days I hallucinated, Head sweats, nausea and vomiting constantly. I couldn’t even keep down water. When they finally discharge me, I was sent to a nursing home for rehab for two months. It was awful. So unless I have a broken bone or surgery, I won’t take narcotics ever again. I have had to since then and I only take them for a few days. I saw it destroyed my father. He was already an angry man, but it turned him into a raging maniac. Constant doses of hydrocodone day after day, year after year, decade after decade. If he tries to skip a few days, he has rebound migraines that make him feel like he’s going to die or wants to.

I never impose what I need to do for myself on others. Some people it works for and I’m happy for them. Have a nice day my friend and God bless you. I’m in Florida also.

Peggy

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Replies to "Good morning, Ronnie. I’m so sorry about your loss. Truly. I know my husband, Barry, may..."

@peggyella
Hi Peggy,
First, let me say, that you are a very strong person! Your ability to take care of your husband and yourself is admirable.
I must correct you. You misunderstood my post. I did not lose my husband (thank God), but I did lose my brother-in-law to melanoma.
Yes, I suffered from chronic pain brought on by Fibromyalgia and numerouse spinal issues. For years, I tried many procedures that I thought might help, but non did. I did NOT take pain meds. I had to work, drive and think and I did not feel comfortable taking pain meds. Basically, I just suffered. After years of trying, I decided that the only course of action, for me, was surgery. If I did not have surgery, the chances of having any quality of life would have been nil.
Just about one year ago, I had my first spinal surgery. I had C5/6 replaced. The surgery went well and the recovery was quick!!! Within a couple of weeks, all the symptoms and pain I was experiencing was gone.
About 5 months ago, I had my 2nd surgery. I had what is call an X-Lift Fusion on L3/4. This surgery was very painful and the recover was VERY long! It took about 3 months for the pain to go away!
I am happy to say that I am now pain-free!!!! I do have other issues going on around my spine and it is starting to look like surgery 3 might happen. If so, I am hoping it will be more like the first one than the 2nd one. So, in the meanwhile I am enjoying my pain-free life since I don't know what the future holds.
That is enough about me!
I love the work you are doing with abused and homeless people! It must give you great satisfaction to know you are making such a difference in the lives of others. I always wanted to work with women who either has never worked or have fallen on hard times and need to prepare for the work world. Maybe one day. I cannot commit to anything because I never know from one day to the next how I will feel or what I will be physically able to do. I don't want to disappoint people who would be expecting me and counting on me.
BTW......there is certainly NOTHING wrong with asking for help for yourself when YOU NEED IT!!!! If you want to help others, you need to learn to accept help for yourself!.
I live in central Florida and used a FANTASTIC pain doc and neurosurgeon if you need one.

Best wishes to you!
Ronnie (GRANDMAr)