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@suzamo

Evidently there's not much to do for osteonecrosis, according to my oral surgeon. I've had follow-up scans since I was diagnosed, and it hasn't changed in a few years. The oral surgeon said it probably won't change unless I get back on biophosphonate type drugs, like fosamax.

It's a small area of necrosis - I only discovered it because I had a sore on my gum that didn't heal. (This was after I had been off of fosamax for a couple of years.) I was eventually sent to an oral surgeon who did a scan and saw the necrosis. The sore on my gum healed on its own after a few months.

I completely freaked out when I googled "osteonecrosis", but the oral surgeon was very reassuring that what I found on google isn't necessarily me. And now that the necrosis has not gotten worse, I'm not as freaked out as I was. The oral surgeon said that I need to avoid things like dental implants, since the jaw probably won't heal if it's injured. At baseball games, I definitely don't sit where I can get hit by a line drive!

The fosamax did help my osteopenia/osteoporosis for several years after taking it, but I'm having bone loss again and recently started Tymlos, which is bone-building so it shouldn't cause further osteonecrosis.

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Replies to "Evidently there's not much to do for osteonecrosis, according to my oral surgeon. I've had follow-up..."

Forteo is prescribed for osteonecrosis. I suspect the Tymlos will heal the lesion, since they are similar drugs. It's a god rule about baseball games, anyway. But I'd bet you could get implants after a couple of years on Tymlos.

I'm trying to find out as much about Fosamax as I can. I've had Osteoporosis for some yrs. now, no problems, but a new Dr. just prescribed this med. It's 70 mg., a once-a-week pill. Picked it up today. Read the insert...OMG, I freaked....the side-effects and warnings just about blew me away. I am supposed to have oral surgery...a complete bridge on the lower left side, which also includes an implant....I have no pain, though....so have put it off. I was told I needed this in Nov., 2023. They said approx. $15,000, minus what my ins. may cover...ugh. (let it go.....too close to Christmas....and maybe I don't need it, anyway?) But after I learned this can compromise the jaw bone...I was like, no way. Now I'M between a rock & a hard place. I take D3, Boron, Super K (K1, and 2 kinds of K2, which are in ea. vitamin), Magnesium and today I started taking Positive 'Super Silca', supposed to help with bone density, among other things...I just hope it helps! I suppose I should take calcium, as I don't get as much as I should through food. If anyone takes calcium, which kind do you take? I read that the 'citrate' is absorbed better, but is that true? Has anyone just refused to take a medicine like this (the Fosamax), where so many have had awful experiences with it? It really scares me. God....can't we get older and just have things easier lol? I guess getting old ain't for sissies?? Trying to do my best....I just don't really know what to do.....