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In the early days of the pandemic, patients with Post COVID Syndrome (PCS) reported troubles with their thinking. This came to be known as brain fog, and since then the term has become of permanent part of the PCS discussion. Yet, if you look up the word brain fog in a medical dictionary, you won’t find any information. That’s because brain fog is not a medical term and it does not have a set definition. However, if we go past the term brain fog and ask patients with PCS what specific thinking problems they have, patients describe amazingly similar troubles.
The most common complaint is trouble finding words during speech. Patients often describe feeling the word they want to say is on the tip of their tongue, but they just can’t proceed. This makes communicating very difficult, which is quite frustrating, especially when suffering a medical condition.
The next frequent problem involves short term memory. The classic story we hear from patients is that they will go into a room to find something, and not remember what they were looking for when they get there. Or they will listen to new information, such as driving directions, and not be able to retain the details.
Finally, patients have problems with multitasking. Doing even simple things at the same time are much harder with PCS. A common example is having troubles grocery shopping while having a conversation.
This pattern of thinking difficulty PCS is surprisingly consistent. It is also not rare. In fact, 45% of our patients in the COVID Activity Rehabilitation Program (CARP) report suffering from brain fog. And unfortunately, of all the symptoms we get to help patients with, thinking troubles are often one of the most stressful symptoms, because it causes problems with work and relationships.
Fortunately, we are now starting to unravel the mystery around brain fog. For example, there are now studies showing that after COVID, there can be brain structure changes, explaining the dysfunction we see. We are also making progress in how brain fog is objectively described. For example, a research study at Mayo Clinic is currently trialing a new virtual test for brain fog. This 25-minute test allows our team to identify specific areas of troubled thinking in patients with PCS. This is important because once we know the problems, we can help patients develop specific strategies to overcome their troubles. And with each test, we are contributing to a growing database that helps describe brain fog in PCS more accurately.
What should you do if you feel you have troubles with thinking after a COVID infection? First, take care of yourself. Eat well, hydrate, and get good sleep. If that doesn’t help, reach out to your treatment provider. We have found that patients that are able to get help sooner, get better faster and more completely.
Together, we can help clear out the brain fog of PCS, and shed more light on the path to better health.
Read more about managing symptoms through early care. Learn tips on talking with your health care provider about post COVID syndrome, and connect with other people in the Post-COVID Recovery & COVID-19 support group.
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No treatment aside from months of
Physical Therapy.
No help.
Hospitalized 3 times.
Once for 3 days.
Attributed to speech malfunction. No treatment.
Many MRI’s.
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1 ReactionOne item to add- I use a V-PAP machine for sleep apnea, prescribed for me because at night I tend to exhale but not immediately inhale creating an oxygen shortage. The V-PAP actually pushes air into my lungs. I have found I wake up more refreshed and with better sleep than before I started using it; and better than a C-PAP which I used before which makes oxygen available but does not push the air into your lungs. Good luck!
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3 ReactionsI went to a neuropsychologist for memory testing, thinking I had Brain Fog...she asked me if I was on a ventilator...I replied NO. She said, "Well you can't have Brain Fog unless you were on a Ventilator! I'm a Doctor, I know this!!" Hmmm! I've known several friends and acquaintances that have been treated for brain fog AND were never on a Ventilator. I call BS on this...I had Covid in 2020 and am still trying to find answers. Also experiencing a chronic cough (which I didn't have before) and horrible time trying to find my words--in my mind, I know what I want to say but it still won't com out! I used to be quite verbal but don't want to talk much anymore! I retired from my job (of 40 years) in a hospital laboratory in fear of making a mistake! I'm 63.
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6 ReactionsI'm so sorry about your daughter! I had LC for months, then getting better, got C again and relapsed. I am currently seeing a Functional Medicine NP and am feeling better. It might be helpful in your daughter's case, as well. Unfortunately, it is expensive and insurances don't pay usually for Functional Med.
Either way, good luck!
🙋🏼♀️ I’m ready for anything to help because the brain fog is thicker than ever and after 2+ yrs it seems to be getting worse fast. So much that if you’re not somebody around me, you think I’m joking or lying because of what I don’t remember. I just think really who would lie about any of this Covid stuff. I want to be the old me not this zombie like person I am now I can’t remember nothing or what happened today or yesterday? It would be such a blessing if you can find a test to know how to make it better so I can think for myself and not look like an idiot when I’m talking to somebody. People look at you like you’re ignorant.
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5 Reactionsi am taking a supplement with the synolytic fisetin, also CoQ10, zinc, and ashwaganda as well as a pine extract supplement. That and fasting 16-18 hrs a few times a week. Something in this regime has helped. Besides the brain fog, i have erratic bp, (previously normotensive) mostly high but sometimes, extremely low. My bp meds were changed and i seem to have better control of the highs on amlodipine, a beta blocker, and losartan. Weaning losartan. This has helped as well.
I did read some research on nattokinase, but i had some bleeding/bruising issues on half a dose of natto, so had to stop that. Perhaps if you can afford a Functional Medicine person that might be helpful. I finally decided i was worth the out of pocket (cough cough $$) and i haven't regretted that decision.
As of July, my job at 25 years terminated me after short and long-term disability and I’m on a long-term disability through a company at work so I’m 64. I think I just applied for SSDI and I’m sure that’s gonna be a long road also so no I can’t afford anything. I just had to sell my house. I just won and a 25 year marriage, so my luck just keeps going downhill but the supplements I know a lot of people like the effects of them, but I just can’t afford them, but I will write it down. Never know what tomorrow will bring. Hopefully something good for all of us. I’m only 47 years old. I thought I was gonna live the rest of my life , happy and eventful