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CAR-T Cell Therapy: Introduce yourself and connect with others
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 9 9:21am | Replies (224)Comment receiving replies
My name is Lynn, I’m 77 years old.
I had CarT cell therapy August 2023 at Methodist Hospitin San Antonio, Tx. I was in the hospital 23 days to monitor side effects.
I am in complete remission and slowly gaining back strength and endurance.
I am experiencing fatigue and muscle and joint pain. I hope this improves with time. I see a physical therapist once a week but it takes days to recover from a light workout.
Wishing you all the best.
Replies to "My name is Lynn, I’m 77 years old. I had CarT cell therapy August 2023 at..."
Hi Lynn, I'd like to add my welcome. You may also be interested in this related discussion:
- CAR-T cell Therapy: Joint and muscle pain
https://connect.mayoclinic.org/discussion/joint-and-muscle-pain-1/
What helps you recover after a light workout? Rest? Pacing yourself?
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Hello Lynn, I had Car T 5 years ago, I am 68 years old. I am so glad to hear that you are progressing so well. My experience at 4 months out sounds very similar to yours. Fatigue, muscle and joint pain still dodge me today, though not as bad as earlier, given it has been 5 years I am reluctant to point the finger at Car T. From my experience, I suggest you are doing the correct things to get your strength back. What I feel worked for me was to insure I ate very healthy, small portions often, exercise as able, incorporate some yoga if you can and most importantly rest whenever you need to. (Don’t worry about having a quick rest or nap anytime, I still do.)
What do you find alleviates the muscle pain.
Keep up the great work!