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← Return to Vulvar Cancer: Anyone else?
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So glad you have recovered. How do you know yours is from hpv? I also had that several years ago, (my spouse had an affair). I did see that was listed as a possible cause on Mayos website but my dr has not mentioned it. I feel very lucky to have caught it early. It has gotten much larger since the biopsy, not sure if it would have anyway or if that just ‘angered’it. My lesion is about the size of my thumb nail. I’m doing a a lot of holistic, natural things right now too in hopes of shrinking it and will continue to take afterwards for reoccurrence. That is the scary part. I have read so many instances where it comes back. Sorry that you have this but it’s nice to chat with someone going through the same process.I had my bladder lifted and some other major things done to my ‘plumbing’ a few years ago and that surgery was rough plus I had complications and had to go under again for more stitches on Christmas Day…I’m not looking forward to more surgery down there:(
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The diagnosis of hpv can be made ahead of time. I was told at DF that hpv related vulvar cancers are generally slower growing than most. For that reason, I decided to "go big or go home" Two surgeries and complete lymph node (16 total) excision both sides (all negative nodes on pathology). That lymph node stuff was tough to get over, but now I am looking at 2 years worth of 3 mo. surveillance visits and that's about it, and 3 more years every 6 months. Completely healed inside and out. It's out of my mind. The type of pre-cancerous skin condition was misdiagnosed initially, and the type of pre-cancer skin condition I do have is less threatening as well.