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@natalie1979

Thank you for this. I am so glad for you as well. He started chemo yesterday and the feeding tube and port kicked his ass. He seems weak. What can I do as a caretaker to help him stay motivated? And what was your diet like? He is maintaining 2200 a day, but it has been a challenge now that he can’t take in much, so he is feeding about 8 hours a day, which is not at night as he has trouble sleeping upright and tethered to a line, so we keep him on during the day which limits his mobility. Did you exercise at all during treatments?

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Replies to "Thank you for this. I am so glad for you as well. He started chemo yesterday..."

@hope24
I could not swallow food for several months so I had Isosource via feeding tube 6 times per day which gave me about 2200 calories. And for a treat I could sip milk shakes.
When the tumor shrunk, it was great to be able to start swallowing soft food again. No I did not exercise during treatment but still lost about 15 pounds. Charlotte and I watched a lot of TV together such as the Major Crimes series. We also played computer games like Wordle. And I took a lot of naps.
Don