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Thank you for your support and input.
I live in St Petersburg, FL. Do I have my head wrapped around it “Absolutely Not”
I was told it’s MCTD, because I symptoms of different diseases, so it could be more than Lupus and RA & Psoriatic. I did have a second bone marrow biopsy in June of 2022, after I got really sick and ended up in hospital with only severe headache and fever (scared to death) treated for a UTI that had gone septic (no symptoms whatsoever of a UTI) turned into a kidney infection and e.coli.
My Hematologist reached to the Mayo Clinic in Jacksonville in 2021 but they were not excepting new patients for this type of research for my issues.
I still work full time and sleep and right shoulder have become my enemy.
Any input is welcome!
Replies to "Thank you for your support and input. I live in St Petersburg, FL. Do I have..."
Hi @callieb1102, it looks like your hematologist already considered that getting a second opinion at Mayo Clinic might be a good idea. If you would like to try again, you can ask your hematologist or rheumatologist to make a physician referral or you can make a self-referral. All the information about how to submit a request can be found on this webpage http://mayocl.in/1mtmR63
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The conditions mentioned in the posts above all fall under the umbrella of seronegative spondyloarthropathies. By definition, these diseases do not have circulating rheumatoid factor, hence the term seronegative. Psoriatic arthritis and reactive arthritis are just two of the conditions. There are several more.
These conditions have "overlapping symptoms" which makes them difficult to differentiate. The thing with the various types of spondyloarthritis is that you can have the characteristics of all of them. The diagnostic label is given according to what symptom predominates.
https://spondylitis.org/spondylitis-plus/an-updated-overview-of-spondyloarthritis-a-family-of-related-diseases/
The following link also has some good information.
If you scroll down you will see a picture diagram that is colorful.
https://boneandspine.com/seronegative-spondyloarthropathies/
The picture is referred to as the "famous venn diagram of spondyloarthritis." The names of the disorders are misleading because it is hard to see how connected they are by looking at the names only.
I'm surprised your doctor tested for HLA-B27. They seem to be on the right track. Unfortunately, being HLA-B27 positive doesn't confirm anything.