1. < Chronic Pain

ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome

Posted by leet3415 @leet3415, Mar 28, 2019

Hi. Quick back story. In Nov 2018 I had sharp pain in the top middle of my abdomen right below my sternum. Pain level 10 of 10. They thought it was my gallbladder, had it removed. Still had pain. multiple ER visits, hospitalized 2-3 times for a week each, 20 plus doctor appointments, over 100K spent in medical costs billed to my insurance.
As a last resort, went to Mayo and was diagnosed in under 30 minutes.

In January 2019 had my first trigger point injection, just had my 2nd injection March 2019. Still in a lot of pain. Taking gabapentin as well. **Has anyone else been diagnosed with this AND what are the symptoms & treatments you are receiving? Are you finding any relief?**

Interested in more discussions like this? Go to the Chronic Pain Support Group.

jgroudan | @jgroudan | Dec 15, 2023
In reply to @daisy4 "Since I cannot publish a link or URL on this website, ask online for Abdominal Wall..." + (show)
@daisy4

Since I cannot publish a link or URL on this website, ask online for Abdominal Wall Pain Questionnaire. Go to Table 3. This strategic questionnaire that can differentiate between visceral (inside the abdomen) versus abdominal wall pain. Fill out the questionnaire without looking at the answers which will give you a point. If you score 10 or more points, there is a very high level of confidence that you are suffering from ACNES.

Stay strong!

Jump to this post

You do not need a 10 pt questionnaire!!! What you need is to perform the carnett test on yourself or with Dr who is knowledgeable about ACNES then get trigger point injections in that area to see if there is temporary relief.
It's all on youtube i.e., carnett test, abdominal cutaneous nerve entrapment.

REPLY
2 replies
vika77 | @vika77 | Jan 31 11:30am
In reply to @jgroudan "You do not need a 10 pt questionnaire!!! What you need is to perform the carnett..." + (show)
@jgroudan

You do not need a 10 pt questionnaire!!! What you need is to perform the carnett test on yourself or with Dr who is knowledgeable about ACNES then get trigger point injections in that area to see if there is temporary relief.
It's all on youtube i.e., carnett test, abdominal cutaneous nerve entrapment.

Jump to this post

Hello. I have been experiencing pain for 1.5 years. Can you share what type of pain you felt?

REPLY
vika77 | @vika77 | Jan 31 11:31am
In reply to @jgroudan "You do not need a 10 pt questionnaire!!! What you need is to perform the carnett..." + (show)
@jgroudan

You do not need a 10 pt questionnaire!!! What you need is to perform the carnett test on yourself or with Dr who is knowledgeable about ACNES then get trigger point injections in that area to see if there is temporary relief.
It's all on youtube i.e., carnett test, abdominal cutaneous nerve entrapment.

Jump to this post

Aching, pressing, burning, shooting? At what moments? I am diagnosed with ACNES, but they say that the pain I feel does not qualify. Every detail, little detail is important

REPLY
quasii | @quasii | Apr 2 8:56am

Does anyone knows this: ACNES (Anterior Cutaneous Nerve Entrapment?

REPLY
1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 2 2:07pm
In reply to @quasii "Does anyone knows this: ACNES (Anterior Cutaneous Nerve Entrapment?" + (show)
@quasii

Does anyone knows this: ACNES (Anterior Cutaneous Nerve Entrapment?

Jump to this post

Welcome, @quasii. I moved your post to this existing discussion so that you can read previous posts and connect with other members like you. See:
- ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome: https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/

Have you been recently diagnosed with ACNES? What led to your diagnosis?

REPLY
View MoreView Less
Please sign in or register to post a reply.