I have been doing that and even reading research papers on the subject. It seems that Craniocervical instability is common with Chiari malformation, but not seeing much about indications for surgery. The wiki article about Craniocervical instability says that Physical Therapy is the most common treatment and that digital motion X-ray is considered the most accurate method. I'm reluctant to rely on Wikipedia, but that seems to align with what I've seen on Ehlers-Danlos syndrome instability, so long as symptoms are not severe. So I'm wondering what the difference would be.

We asked about PT after his surgery, and the neurosurgeon said that it wasn't needed and wouldn't really help anything.

He's 11 and has alot of growing left to do.

I was hoping someone with some personal experience with PT as treatment might chime in.