← Return to NET symptoms despite follow-up lab work ok
DiscussionNET symptoms despite follow-up lab work ok
Neuroendocrine Tumors (NETs) | Last Active: Dec 21, 2023 | Replies (42)Comment receiving replies
Replies to "I don’t know the answer to that"
Dr. Sonbol and his team saved my life. So, I am biased. By the time that I finally got to him, I was in pretty bad shape. Looking back, I didn't really realize it. I was on CAPTEM for 12 months and now just the Cap part for three months. I have put on 50 pounds after losing 120. My primary in my pancreas was 8x6cm. It is now 3x2cm. My liver lesions, too many to count, are practically gone. I am in maintenance mode now. I live an hour away from Mayo Phoenix. I usually drive there in the morning for my bloodwork and scans, then drive home. My wife and I will have a video meeting with Dr. Sonbol, or a member of his team, later that afternoon to review the results and plan our next treatment steps. It took a little while to work out the logistics, but this is now working for all of us. Here is the best part of Dr. Sonbol and his team: We trust them. They are great people that happen to be amazing medical professionals. They are NET experts, so we don't have to be. I can just be a patient. I do what they tell me to do. I can find examples on line to contradict everything that my care team tells me. I make it a choice not to. I am not a doctor nor a medical professional. They are. I can just be a patient.