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Newsfeed PostNewsfeed Post in blog Ehlers-Danlos Syndrome
EDS Clinic Patient Stories Apr 2 12:06pm | By MeekaC (@meekaclayton)Comment receiving replies
I wish Rochester had more people with the knowledge to diagnose hEDS. The screening criteria is even located in the Epic Screening tools. Unfortunately, not all of us can travel to the Jacksonville, FL location.
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@csalter, there are Ehlers-Danlos syndrome experts at the Rochester, MN location of Mayo Clinic. See listing of specialists and filter by location https://www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome/doctors-departments/ddc-20362171