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← Return to IVIg Infusions for autoimmune neuropathy
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IVIg Infusions for autoimmune neuropathy
Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (29)Comment receiving replies
@johnbishop and @pb50 Pam -- Thank you for responses to my question on auto-immune treatment by infusion. Of course I will look into anything that seems reasonable. I have no specific diagnosis except OLP, which doctors simply refuse to treat, and may or may not be related to larger symptoms. Can anyone tell me: (1) do infusions work? (2) Are they covered by insurance? (3) Side effects? (4) Do they hurt? Or any other info based on your experience. My current symptoms: slowly developing feeling of "vibrations", moving over 2-3 years from lower leg upwards to entire body; now it is neuropathy. I can walk distances on even ground, but have other odd impediments to ordinary walking around. Also, the vaccine made all of this much worse. Since it is supposed to "hype up" the immune system, I believe it over-hyped mine to the point that it is attacking me. A ny opinions?
Replies to "@johnbishop and @pb50 Pam -- Thank you for responses to my question on auto-immune treatment by..."
One more point. The objective of a newer gen vaccine is to teach your immune system to react something that looks like this (shape, Protein,‘etc) not really to get it hyped up. Based on what I know about how they work, I doubt a vaccine was the root cause of your issue.
@johnbishop- I too have developed peripheral neuropathy from Chemo. I feel it has worsened
after contacting the covid virus at least 3 different times. The last bout of covid resulted in a broken 5th Metatarsal bone that didn't heal. I feel that I am still fighting the inflammation from the virus.
I know there are no answers for the disabling affects that the virus leaves on a person.
Maybe, one day we will find what this virus has done to out bodies. I'm sure there will be more autoimmune diseases and Parkinson's diseases. Definitely a bio weapon has been released on the American people.
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@jshdma, I'm sorry to hear that you haven't found anything that helps with your symptoms. I'm not sure anyone here can answer all of your questions but they are certainly good questions to ask. Do infusions work is a depends questions for me. I think it depends on the condition you have and other related factors could make a difference if they work or not. I think insurance coverage is definitely a question to find out before getting an infusion. Your doctor or insurance company should be able to answer that one. I think it may depend on the type of infusion and what condition is being treated. I've had several different infusions but none related to neuropathy or vibration type symptoms. I've had one for iron deficiency anemia and a few at the ER and hospital for a blood clot. I can't say that any of the infusions were painful but maybe a little uncomfortable at the time.
Are you able to seek treatment or a second opinion at a teaching hospital or major health facility?