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NET symptoms despite follow-up lab work ok
Neuroendocrine Tumors (NETs) | Last Active: Jan 26 2:14pm | Replies (49)Comment receiving replies
Have you considered Mayo in Phoenix? There is a terrific NET specialist there (Dr. Sonbol) and linked into the whole Mayo Net team. I commute there for my NET scans, care plan any specialized treatments not available locally ( which has been excellent), and coordinate the Mayo Net expertise and leadership with a local oncologist for routine care locally. It all works and is so worth the 7 hour drive!
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I tried getting an appointment with the Mayo Clinic. They don’t take my Medicare plan. I was told they don’t take Medicare at all and do not take cash paying patients. So you have to have a great insurance they can use for all consultations and test. I wish they would post that on their site!