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@rocky1

Hi, hope you’re doing well. SUNCT stands for short lasting unilateral neuralgiform headache w/conjunctional injection & tearing hahaha! What a mouth full. Basically, I get shooting pains in my head, temple & eye area. You never know when it will happen & only last a few sec. but it’s nasty. Some days only a few bad zaps like zap zap zap & when it’s bad it’s about a hundred during the day & it’s brutal. It will bring you to your knees. How about you?

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Replies to "Hi, hope you’re doing well. SUNCT stands for short lasting unilateral neuralgiform headache w/conjunctional injection &..."

@rocky1 oh my! I’m sorry you are experiencing that awful pain.

As far as getting an appointment at Mayo, I’m assuming you called them, and got permission to send them your records first.
I think it’s strange that the records from several doctors got lost.
I know from personal experience that it can be hard to get an appointment at Mayo. I’ve been treated at the Phoenix/Scottsdale location.
I think it would be best to keep calling them.