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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 1 day ago | Replies (7075)Comment receiving replies
You've got to find a new doctor or a second doctor that specializes in your kind of lymphedema. I saw my specialist today and she didn't know of anyone in your area but she's not familiar with your area at all. She pointed out to me that you and I have very different kinds of lymphedema with your is being caused by a heart condition. She said once your leg is healed that wrapping wood be important. Once your leg is under control and you're ready for garments to wear after the wrapping phase go to compression Guru. Com they are the lowest priced and most knowledgeable dealers for garments bandages compression socks the whole nine yards of everything that you can use. Please find a lymphedema doctor don't go on letting this get worse and worse. Cellulitis is no joke and if it goes septic on you it's real serious. If you can't find a lymphedema specialist maybe you should look at wound care specialist who can help you with getting your leg under control to where it's not weeping and then you can start wrapping it and controlling it. Life is a lot easier once you have this thing under control. Good luck love and blessings
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@wsh66 Stephen, I cried when I read your note. I can’t believe that there is someone out there who cares enough to do what you’ve done for me. This is a hard time for me and I haven’t told you everything. I’m under so much stress right now that I don’t even remember what I have told you. Ok, here goes. My brother and I moved here in March. We both lived here most of our adult lives. My brother moved for a job. I got disability for fibro, RA, back issues. So I couldn’t support myself and moved in with my brother. I spent 7 years living near Greensboro, NC with him. When he lost his job, we decided to move back home to Cary. Not long after we came back, my leg started swelling. In the summer, they told me I had heart failure. I still haven’t processed it and am in denial I think. Not long after, I fainted and they found I had a clot in my lung. So now I’m on Eliquis for at least 6 months. Through all this, I’ve still got the swelling. I’ve been on antibiotics most of the time. The $ from the house sale runs out soon and I don’t know what’s going to happen to us. My brother has been working a part time job. He is too depressed to look for something else. I’ve tried to get a social worker. You have to call and leave pertinent info on a recording, and they get back to you in THIRTY DAYS! So these last 5 years have been hell. I got a perforated colon and almost died. When I was in a rehab facility recovering, my Mom (my best friend) got the same thing and died. I couldn’t get to her. Within a week of her death, I found out that my brother had called my doctor, trying to make a case that I should be in a nursing home for good. He had sold off my beloved piano without telling me. He couldn’t handle living with me, I guess. At that time though, when I came out of rehab, I was fine. I lived elsewhere for 2 years, then he saw me struggling financially and told me to come back. I’m afraid he’ll kick me out again! So I have all these physical issues, plus I don’t know if I’ll be homeless in March when our lease runs out. And I’m losing my faith. I’m on the verge of a breakdown. I had 1 a year ago and don’t want a repeat.
So there it is. Thank you if you’ve taken the time to read this all the way through. I appreciate it!