Hi, I’m Roxanne Cady and live in FL. I’ve had chronic head & facial pain, 1/4 of my face is numb & loss of taste for 23 yrs & getting worse. I’ve been diagnosed with SUNCT about 10 yrs ago. It’s very rare & very painful. I can’t get seem to get an appt w/Mayo JAX Neurology. Suggestions? I’ve had several doctors fax records but they are never recd. then I give up. So, two issues 1. Anyone else have SUNCT/SUNA 2. How to get appt??? Thanks!