← Return to NET symptoms despite follow-up lab work ok

Discussion

NET symptoms despite follow-up lab work ok

Neuroendocrine Tumors (NETs) | Last Active: Dec 21, 2023 | Replies (42)
Comment receiving replies
@tinerobison

I am so glad you found some answers l! Personally for us I think we just need to find the right doctor who wants to help instead of making my husband think he is completely crazy and making this stuff all up! Not sure how you can make this up when daily your lying on the floor every night thriving in pain in his stomach area!

Jump to this post

Replies to "I am so glad you found some answers l! Personally for us I think we just..."
terlato | @terlato | Dec 13, 2023

I totally know how he and you feel. At least you are there to confirm it. My symptoms have been happening sin 2011! I live alone and that's why the doctor's don't believe me because no one has witnessed it happening to me. We are not crazy! Just that they are not knowledgable about neuroendocrine tumors. Just keep going until you find the right doctor that will listen and help. Very frustrating, but eventually there will be one smart doctor that will give you the answers and help. Try your best to find a Neuroendocrine doctor where you live. Unfortunately, there aren't any in Las Vegas! If all else fails, when he is in horrific pain, go to the ER. Then they will take it seriously and do bloodwork and scans right away. Maybe you will get some answeres. My best to you both and trust me I know how he feels. Please keep us informed. Happy Holidays and may the new year bring you peace especially with your health.

VIEW AND REPLY