We went to a PNET specialist at Mayo in Rochester, MN and he completely ignored our concerns he said it wasn’t coming from the tumor.. I was completely applaud by his behavior as a physician there he had no compassion. We were so excited to go to Mayo hoping we would have a plan when we left there and when we left we we’re more confused then ever.. we were completely disappointed because we thought Mayo’s reputation was they would find a solution as they advertised. Nope we were sent on a plane to go home! Completely discouraged!! I personally think we just saw the wrong doctor there!