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@kentkemmerling1949

I have been dealing with what has been diagnosed as Long Haul COVID, but was rejected by the Mayo Clinic program and one here in Indiana. I have been so dizzy and off balance since I recovered back in Dec. 2020 that I couldn't exercise much. Last week I went to an ENT for some ear checks and he mentioned if I had considered "normal pressure hydrocephalus". I had not, but am familiar with the disease since my father passed away from it and it was a terrible death. I am going for a screening for this problem just after Christmas and hoping that is the problem since there is a surgical repair that has a high success rate.

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Replies to "I have been dealing with what has been diagnosed as Long Haul COVID, but was rejected..."

@kentkemmerling1949 ,
Hi, I had covid19 in January 2021. Almost every doctor had I was the first covid long haul patient., and some I recenly was sent to specialtist. My primary care doctor, I had for a very long. She could tell I was all jacked as a result. She dug deep to get me information and try some medications that might hepl a bit. I was lucky that they did not dicount my as heath prolems as a direct result.of Covid19. I was/am very lucky. So many awful effects, I understand what you are going through. I had gran mal seizers as a result. I'd come to sometimes in the ER. My memory is a total mess. so much more. I would back out and drop and come to on the ground. I have broken limbs, puncture my lung and a broken ribs. It is crazy. I Just recently I got some medication. In stead of seizuers. Now I wobble around, almost falling, run into things. I drop and break things daily. I squat down to pick up something and I can't get without assistance ga.rab what ever is around to help. I am so grateful. I always break things because sometims my hands don't know what the deal is there.
I just created a youtube channel, To talk about what we go throw daily. @spicykim430. I hope it helps or maybe let you know that you are 1000% percent are not alone. It's hard to deal with, let alonghave are not treating your symtoms. Hang in there! I hope you find a doctor that will help you.