← Return to Has anyone had Paget's disease of the vulva?

Discussion

Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)
Comment receiving replies
@lrcg

I was rushed to surgery. My Dr acted like she knew what was going on with Pagets but now I am shoved off to the PA that just doest know I would hold off on the surgery if given the choice again. There is the cream used for vaginal warts that has worked for some. That is what I would like to try next. You might ask about it.
Drs also have me tested for every other cancer. I know it can get in the lymph nodes but so far not for me yet.
Keep me updated. Take care

Jump to this post

Replies to "I was rushed to surgery. My Dr acted like she knew what was going on with..."
ameliae | @ameliae | Dec 13, 2023

Thanks. Yes - once diagnosed it was surgery on. Surgery off. It 'snot a big deal a few said.
It's because it's so rare, so many medical professionals don't know a lot about it. Ummm... yes it is big. Huge. Then a couple of really great women surgeons. Offered also horrendous radiation therapy - where it still comes back. So... as awful as the accident has been, it's helped me breathe into te future and not have to make such huge decisions yet. Yes - tested for other signs - colonoscopy, etc. Sigh. Take care. There should be some kind of study going on. and we should be part of it.

VIEW AND REPLY