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Vietnam Veteran: Brain tumor after prostate cancer

Brain Tumor | Last Active: Feb 5, 2023 | Replies (14)

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@bowiered51

Hello my fellow Tumor Folks
I have been trying to live with Tumor waiting for surgery being done by VA since its related to my service, what has been found is that the tumor is wrapped around at least 3 nerves facial, hearing and speech and the surgery will take up to 5 hours my question is related to all so I’m asking for those who may have had the same issues and the surgery to let’s us know the outcome of the surgery that you may have had or if you had surgery or radiation how are you doing now and any complications?

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Replies to "Hello my fellow Tumor Folks I have been trying to live with Tumor waiting for surgery..."

I haven't experienced the exact situation. However, I've not only had 3 brain surgeries for tumor removals in my R frontal/ temporal region, including almost a whole lobectomy, but after a length of time with good recovery, I was able to go back to school and now work in NeuroDiagnostics at 2 hospitals. During the brain surgeries, many are done while the patient is awake and partially sedated, with inetroperative monitoring aka IOM so they can monitor how close they are to nerves, etc and also ask the patient questions and see if they can follow commands, so they can see how their speech is, ask questions to see if you can remember things, make sure you can squeeze your hands, etc.

Thank you for sharing. My brother just had brain surgery to remove a tumor and necrosis caused by radiation of that tumor. 1 week ago. Left side weakness getting stronger but his ability to figure things out is bad. Like takes his shirt off to change his pj bottoms? And anger issues. Did you have these problems at first. This is his 4th surgery. 1st 3, over 10 yrs, were on right side. This time through top of head, more center. He's in therapy till Dec22. He was in IT. His ability to organize was his life.
Have you had radiation? He's been married since his wife was 16, 45 yrs. They've always been super close. So this is hard on his wife. Just wondering did you have these bad effects before things start to get better? I've read about doctors at his point that are now doctors again. Thanks so much for sharing your story!

Thanks for your response. You sound like a great person. My brother was head of IT for work. So not being able to figure out how to use a phone or TV remote or drive must be frustrating. His surgery was Dec 4th, so he has no patience. He's recovering physically pretty good, way underweight but eating good now. So I guess he thinks his brain should be healing just as fast. It's only been about 3 months since he quit being able to drive or use a phone. His temper is something we have never seen before. He's 65. He has always been the most patient person in the world. He has his wife, son and me for support. What kind of doctor or medical person helps him be patient and try to heal before retraining his brain to find his empathy again? Fingers crossed. Thanks for your info. You are a shining star ⭐. From St Cloud MN.

It is hard to see one's own degrading of abilities. I was also had tech as part of my career. It's become harder and takes longer for me to remember how to do things I used to do easily.

I am using this change in ability to explore what I CAN do and to finally look into alternative work paths that I've always wanted to explore. I hope that your brother can find his "new normal".

I pray everyday that we all will recover without these side effects from these tumors. Wish there was an easier way and they would just shrink and disappear.