← Return to NET symptoms despite follow-up lab work ok
DiscussionNET symptoms despite follow-up lab work ok
Neuroendocrine Tumors (NETs) | Last Active: Dec 21, 2023 | Replies (42)Comment receiving replies
Replies to "My husband has been having the same difficulty. We can’t get any physician to help us...."
My doctors would not listen to me at all! Just kept saying they don't know why I get sweating, nausea, vomiting, diarrhea and finally I faint! Now wouldn't you think they would check further???? No, just do nothing. So doing this Prenuvo scan showed the nodules on the lung and pancreas. All my CT and PET scans showed nothing. So they were shocked. And NO, not one of them would look at my disc. They were afraid of a virus. But, not one of them told me I could go to Southwest Medical Radiology(I live in Las Vegas) and ask them to upload the disc to my records. And do you know who told me this, it was the PA that I saw Monday for the nodule on my lung. She was shocked that not one doctor told me this. She said many people come in with disc from other states and the doctors tell them to have them uploaded. I think they did not want to tell me because they are being sarcastic about the Prenuvo Scan being the scan to the Hollywood Stars! The Prenuvo is not only in LA it is in other states. I am so upset with the medical care out in Las Vegas. They have no interest unless they order the test. I also have CLL and again it was a PA that diagnosed that after a couple of years complaining of the the symptoms. All the doctors I saw told me I had a urinary tract infection! OMG, just listen to your body and change doctors when you do not get answers. If you have trouble doing that, call your insurance company and ask them to help you. The PA for the lung feels most of my symptoms are coming from the pancreas. I have an endoscopic ultrasound in January with a new GI doctor! Most doctors, especially out in Las Vegas, never dealt with a patient with Neuroendocrine symptoms. I spoke to one surgeon who said in all the years he was in practice he only had one patient. So that's why when you tell them your symptoms, they can't think outside the box. They would tell me it's your CLL, which I did not have when my symptoms started or it's hormonal, had all that checked out perfect. I'm not diabetic, no high blood pressure, actually nothing but the CLL and I do have a rare neurological disease which would not cause the symptoms I am getting.
So I suggest once you get the scan request the disc, they will mail you a complete report and disc. Then ask your primary doctor where you can get the disc uploaded to your records. I'm sure every state has the same regulations for out of state disc. If you don't get answers call your insurance company and ask them how to get the disc uploaded to your medical records.
I want to wish you the best of luck. I know what you are going through. I'm a persistent person and I never take no for an answer when I know there is something wrong. My best to you and please keep us updated on your scan. You will be very impressed with the Prenuvo team. They are so kind and compassionate.
I see the PA for the lung in 2 weeks and she said probably will order a biopsy.
^ Prenuvo