← Return to Has anyone had Paget's disease of the vulva?

Discussion

Has anyone had Paget's disease of the vulva?

Gynecologic Cancers | Last Active: Sep 27 8:18am | Replies (142)

Comment receiving replies
@ameliae

I was hit by a car backing up on October 12, breaking my humerus/shoulder. Gradually getting back .... put off seeing oncology/gyn because I couldn't move much... also had mammogram to do and had had other tests. Burning in one place continues --- was prescribed CBD oil at night (and now morning. Help with pain and relaxing for sleep. THC to use as much as needed (after urinating every time for sure). I haven't opted for surgery. Yet. I'm not sure I will. I'm 77. It is bearable. There are a couple of things I want to do before I head off this mortal coil. I wonder if they don't push for surgery too quickly sometimes. I've had it for at least 8 years without being diagnosed until last April. The expectation is it will come back, right? I don't think doctors here know a lot about it. A plastic surgeon to whom I was referred was very nice and in the end said perhaps I could have just the most painful (small) area excised.

Jump to this post


Replies to "I was hit by a car backing up on October 12, breaking my humerus/shoulder. Gradually getting..."

I was rushed to surgery. My Dr acted like she knew what was going on with Pagets but now I am shoved off to the PA that just doest know I would hold off on the surgery if given the choice again. There is the cream used for vaginal warts that has worked for some. That is what I would like to try next. You might ask about it.
Drs also have me tested for every other cancer. I know it can get in the lymph nodes but so far not for me yet.
Keep me updated. Take care