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Neuropathy | Last Active: Jun 13 6:09am | Replies (111)

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@julbpat

Jerry, I have not researched a Spinal Cord Stimulator, but I don't think it would help me. I have polyneuropathy, which means it affects nerves all over my body. I also have autonomic involvement. That would be dry mouth and eyes, dizziness, heart palpitations, itching, digestive and bladder issues - I can't think of a part of my body that isn't affected by small fiber neuropathy. It involves widespread pain and weakness, made worse by even limited overuse of my muscles - and I mean very limited use, like using a rake or broom for even 20 minutes. Fortunately I am able to treat most of this with corresponding medications - Restasis for dry eyes, Pindolol for elevated heart rate, Omeprazole for reflux that will lead to an esophageal spasm before I can stop it, etc etc. I use a small amount of Percocet, and Baclofen helps as a muscle relaxant. I go to PT for help with pain, and now OT for help with dizziness.
It's a lot. I think a lot of people with SFN just have the painful feet and limbs. Hopefully you will be in that category, if you do turn out to have SFN! But back to the Spinal Cord Stimulator - I don't think its meant for this type of polyneuropathy.

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Replies to "Jerry, I have not researched a Spinal Cord Stimulator, but I don't think it would help..."

Thanks for your reply. God Bless you julbpat. Does what you take help with your pain? There will be a time when all pain will be gone. I believe the Lord is on his way back sooner than later. I had a EMG 2 weeks ago from knees down, and results were all normal. I can't get into Neurologist until Mid March. I keep calling them to see if any cancelation though. Today I found a Podiatrist under my insurance who does SFN Biopsy. I am going Friday to get that done. They said to me they do 3 spots, 1 on top of foot, 1 above ankle and 1 above calf. I was hoping they would be doing it in spots like you had done. But I suppose better than nothing. Also our deductible and out of pocket is met for the year, so it won't cost me anything. I am still going to ask the Dr doing the 3 spots if they can do one up below hip, kind of like where your 3 were done. One more question. There are times when I move my ankles around ( up and down, and in circles, once a week maybe) it feels like they are stretching and tendants and ligaments are like ripping apart, and on bottoms of feet. Really weird. I do have 5 bulging disc in lower back from concrete work for 26 years and foraminal stenosis in a couple spots and arthritis in a couple. And they did show me MRI where all discs are pressing against sciatic nerve. Well, I suppose even the spots the Podiatrist does will at least let me either rule out SFN or not. I hope are well. My prayers are with you. Jerry

Julbpat. Have you ever had your b6 tested. Read about b6 toxicity. Understandingb6toxicity.com might be a dead end by if you take supplements with b6 could be a problem. Many physically fit people tend to take supplements, protein drinks, energy drink with b6. B6 is known neurotoxin.