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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@harley22

Previgin infusions did not help me.
Had 7 mos of infusions every 3 weeks x2 days per week.
Thank god my insurance covered the cost, but I’m disappointed it didn’t work for me.
Now I’ve been recommended Rituximab infusions by my neurologist, but my insurance will not cover it.
What they will cover is Rituxan, which would cost me a copay of $1100.00 each time I get it, and it’s not a guarantee that it will work for my CIDP.
As a result, I’ve decided to hold off for now, I can’t afford the copay, especially since there’s no guarantee it will work for me.

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solobeee1 | @solobeee1 | Dec 13, 2023

I’ve been getting IVIG for another condition for 6 months & also have PN for years but the IVIG has done nothing to help the PN.
Try LDN (Low Dose naltrexone) which has relieved most of my pain but not the numbness. Look here for details: https://www.drugs.com/medical-answers/low-dose-naltrexone-ldn-3570335/

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Jim, Volunteer Mentor | @jimhd | Dec 13, 2023

I know that the numbers aren't high for success with IVig infusions. I wish that they had more effect on the pain, but if it's slowing the progression of CIDP, I figure that's a reasonable reason to continue with them for me. I hope you're able to find a helpful treatment.

I'm having surgery next Monday, and after that I'm starting to take low dose Naltrexone, hoping it will reduce the pain in my feet and ankles. I think I've tried every other possible medication, and if it doesn't help I'll be going back to MS Contin while I wait for a pain pump to become accessible here in central Oregon.

Jim

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