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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 18 hours ago | Replies (7049)Comment receiving replies
@grandmar. Hi Ronnie! I need to talk! I am going through some awful pain and feel like I can’t take much more of this. I am tired of crying and moaning. I have pain meds, but they are too little to help. I purchased some CBD oil, but then was diagnosed with a clot in my lung and was told not to take anti inflammatories. I know CBD oil works on an anti inflammatory level so I desperately want to try it but am afraid. So I cry instead. I just can’t be positive when I’m feeling so down!
Replies to "@grandmar. Hi Ronnie! I need to talk! I am going through some awful pain and feel..."
@karen00, I am crying with you. I am so sorry you are in so much pain. My level of pain is obviously not the same as everyone else on here. You know there are actually times when I have no pain? But much of the time I am doing the medicinal do-si-do, in just an attempt to make it through the day. Some of my meds were recalled for causing Cancer. Some of my medicine was making me terribly ill, just as ill as not taking any medicine at all. I have finally got it all worked out to where I use a combination of things that work. All medicines have side effects, and I was a bit foolish, I must admit, to not research the meds more carefully. I have not used CBD oil but there are indeed individuals on here who have. Many have good results. Browse through some of our support groups on here, and see if anything strikes a chord with you. Situations such as ours require a multifaceted approach, indeed, a mixed bag of tricks that we pull out when something stops working. We must never give up! Carefully work with your good doctors, research all you can, and stick with us. We are here for you and want to help you all we can. I want to hear from you as soon as you have a spare moment. By the way, I was diagnosed with Fibro in 1990. So, we have a lot of "war stories" to share. God bless you and keep you. All good thoughts and prayers going out to you.
Love and light,
Mamacita
@karen00 CBD oil has vitamin K in it. That would thickens your blood. If you have a PE already, you should not be taking it without talking to your anticoagulation clinic. I'm assuming you are on a blood thinner due to the clot.
@karen00
Hi Karen,
So sorry you are having such a bad day! I know how you feel. I've had many days where all I did was cry, cry and cry some more! I also had very little relief from the pain. One thing I learned was that it is important for you to stay ahead of the pain by taking the pain meds before the pain gets uncontrollable. I hated taking the pain meds, I was afraid of getting addicted, so I didn't take them as often as I should have. As a result, the pain would become HORRIBLE!!! When I started to take it more often, it worked better. I cannot take NSAIDs, either. I had weight loss surgery and NSAIDs are not allowed. Now, other than pain meds, all I can take is Tylenol type meds.
As far as CBD oil, I really cannot give you any guidance. I have never used it nor do I think I will, not anytime in the future. There is no real reason, it's just not on my list. There are several people in the group who use it and would be able to help you. As far as I read, there is nothing to be afraid of. Still, I suggest you do your own research so that some of your questions can be answered. Put out your questions and I am sure you will get many responses.
In the meantime, there are a few things you should try, when you can:
*Take your meds as prescribed.
*Take a soak in a nice warm tub. Add oils or salts with a nice relaxing aroma.
*When you are having a good day, take advantage of it. Go out and do something nice for yourself like a mani/pedi or shop. If that is not your thing, do something you miss doing when you don't feel well.
*Don't overdo when you are having a good day.
*When I began with my last pain doc, he hooked me up with a therapist that specializes in patients with chronic pain. If you have that ability with your insurance, it is worth the try!!!!!
*The more you move, the better you will feel! Go to a store where the weather won't impact you. Go to one that has shopping carts for you to hold on to. You'll be surprised how much better you will feel in a few days. I know, I know, how do you walk when you have pain?? Gingerly and slowly. You may only take a couple of steps to start, but that is OK.
*If your insurance allows it and you can get a script, try aquatic PT. The warm water is great. If not that, look for an aquatic program giving by the American Arthritis Foundation.
I hope this helps. I am glad you wrote!
Feel good!
Ronnie (GRANDMAr)
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Hi @karen00, we're here. We're listening.
Can you think of soothing things that have worked for you in the past to help reduce the pain or distract you from it? I'm not dismissing your anguish and pain, but acknowledging it. With the limitation on medication for you right now, can you focus on alternatives: deep breathing, a walk in nature, talk with a friend?