Excellent information. I briefly tell my Dana Farber oncologist about situations with people here who are told everything is within acceptable range, yet they continue to have the symptoms. We do have to be proactive in our health, we know we are sick but I feel that unless there is a lab report that verifies something is "off" , there is no "next step". It is better to have second and third opinions until we find a definitive answer. My oncologist appreciates the time I spend investigating neuroendocrine cancer and the resource sites I use i.e Mayo Clinic, NIH, National Cancer sites. I know at some point my "Ninja in the Reeds" cancer will manifest itself, & I want to be well prepared to discuss tests/procedures to be performed. I pray for all of you.