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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: May 29 7:12pm | Replies (422)Comment receiving replies
Is IVIG a treatment you'll need forever? How often? For how long? Is it expensive is it?
I almost can't walk anymore because of the PN in my feet. It's definitely crippling. I used to be a runner, then a walker of 5 miles a day, and now....it's hard for me to walk through a grocery store. I'm so thankful for being able to order most of my groceries so I just do limited walking in the stores.
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Normally PN has no cure because it deals with long fiber nerves. We are told that in anatomy and physiology in college. I went through RN school. Small Fiber Neuropathy is treated with IViG therapy. SFN affects heart, bladder, stomach and kidneys along with other organs. If you google Dr Anne Oaklander from the University of Boston she is a research neurologist. She has several YouTube where her seminars have been recorded. I have currently been scheduled to see her on Feb 8. She normally does not see patients so getting into her directly is difficult. She has been working on researching neuropathy since at least 2015.