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Metastatic Papillary with BRAF

Thyroid Cancer | Last Active: Dec 13, 2023 | Replies (6)

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@koh

I do not have any background on BRAF but I am so sorry to read about your situation! It sounds like you are doing the right thing by going for a second opinion just to be sure you are doing everything you can for yourself. One of the things that I find helpful when I need answers is to go to google scholar and search for the research on the subject. The research on the subject may give you a clearer picture on where to go for a second option… if a hospital is doing research on the subject you can try and go to one of the doctors listed in the research. Another suggestion is to look on the hospital website for support for cancer patients….. I saw it mentioned and it might help you keep things in perspective. I know Gildas club in White Plains (Gilda Radner) has a lot of good resources for people dealing with cancer to help heal their spirit while providing support. I haven’t check recently, but they used to have a nice website listing their programs….definitely worth checking. I called them to inquire for a friend going through cancer and they were very helpful. Good luck!

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Replies to "I do not have any background on BRAF but I am so sorry to read about..."

Thank you for the support and info. I live in Long Island, so White Plains may not be realistic for any consistency, but it could definitely be a start. I looked into support groups through Mt Sinai, but the information I was given did not include a thyroid cancer group.

Again, thanks for taking the time to respond and give some much needed support.