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How long has PMR lasted - I'm trying to find the average

Polymyalgia Rheumatica (PMR) | Last Active: Dec 26, 2023 | Replies (136)
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@queenie2030

My PCP diagnosed my PMR 3 years ago telling me I would only be on it a month! She started me on 20 mg prednisone then dropped to 15 mg after a month. It worked quite well but I have never been able to taper below 10 mg without a flare. I am starting Kevzara now hoping it will help me taper. I chose it over Actemra because I can inject it bi-monthly and not drive 88 miles for a monthly injection. The benefit of getting off prednisone outweighs the risk for me. I see my rheumatologist every 90 days. He is the best!

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harelover | @harelover | Dec 13, 2023

I have been tapering from 20mg since my initial diagnosis in July. I have just dropped to 5mg but unfortunately my symptoms are returning. I have been splitting my dose 1/2 mid day and 1/2 night. I was getting no relief when I took it in the morning and only saw positive results when I switched to taking it at night. I had no trouble sleeping. Now I'm wondering if I should try switching the time again since I read on this forum that morning is the best time as it mimics the body's natural cortisol rhythms. I'm also wondering if Kevzara might be in my future. Am I correct that you still take predisone while on Kezvara but can taper more quickly. What is the typical dosage of predisone when first starting Kezvara?

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