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Metastatic Papillary with BRAF

Thyroid Cancer | Last Active: Dec 13, 2023 | Replies (6)

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@sweettoothd

I too have the Braf v600 mutation and tall cell. I had a TT a year ago, and RAI in May. I really do understand your fear- I fight it constantly, and when any new thing happens in my body, I automatically think metastases. I too have numerous small nodules on my lungs, which they have waited to see if they grow. I have RA(rheumatoid arthritus) as well. I am going in for my 6 month thyroid bed ultrasound, and lung catscan this Friday and am terrified. I have suddenly developed a cough, and like you have shoulder pain on one side, and discomfort where I believe a salivary gland is which radiates up to one ear. I just am so scared its my lungs now. Try and stay strong- it is important to live your life- otherwise you are depriving yourself of positive and supportive things. I just had 2 new grandchildren, and am thankful I can enjoy them now. I still work 4 days/week, and walk 3 miles almost every day. I remind myself a lot that each day is not guaranteed to anyone. But believe me, I am scared too!! I did join a Thyca in person support group, and although have only made a few meetings, it has been really helpful to be with others who although have been through a lot, are overall living and doing well! Would counseling with someone specialized maybe be of benefit to you?? Stay hopeful and strong, and try and enjoy TODAY.

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Replies to "I too have the Braf v600 mutation and tall cell. I had a TT a year..."

Thank you so much for replying. I am sorry you are going through it too. I am praying for good news for both of us. Hopefully we can stay in touch!