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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@jimhd

I've been having IVig infusions every 4 weeks for over a year. It's hard for me to know what any lessening of pain to attribute to the infusions, or to other things I throw at my idiopathic CIDP. But before I started, my nerve test had shown a disheartening jump in the progression of the disease, and a recent test showed that it has stabilized, which is reason enough for me to continue the infusions. I never had any side effects from the infusions. I was just glad that Medicare approved it because there's no way I could begin to afford the Privigen. It's outrageously expensive. I'm grateful for the various doctors who care for me, who listen to me and believe what I tell them. I've had only a few doctors over the years who treated me poorly, but none currently, thank the Lord.

Jim

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Replies to "I've been having IVig infusions every 4 weeks for over a year. It's hard for me..."

Previgin infusions did not help me.
Had 7 mos of infusions every 3 weeks x2 days per week.
Thank god my insurance covered the cost, but I’m disappointed it didn’t work for me.
Now I’ve been recommended Rituximab infusions by my neurologist, but my insurance will not cover it.
What they will cover is Rituxan, which would cost me a copay of $1100.00 each time I get it, and it’s not a guarantee that it will work for my CIDP.
As a result, I’ve decided to hold off for now, I can’t afford the copay, especially since there’s no guarantee it will work for me.