I’m in the DC Metro area. I’m aware of only one internist, in suburban MD, who specializes in EDS… and he quit taking new patients over a decade ago.

POTS hit my niece hard several years ago. I found a cardiologist specializing in POTS in northern VA and got her an appointment. She had months of testing early this year, then waited 6 months to meet with the doctor (it would have been even longer if I hadn’t called every day to check for cancellations). After meeting once, being prescribed drugs and a treatment plan, he notified her that her follow-up appointment was cancelled; she could call back in a year to schedule her follow-up.

My niece is young… I’m hopeful that EDS/POTS awareness and research will improve quickly enough for her to benefit.