EDS/POTS doctors are important, but are sadly still hard to find. An important supplemental strategy is building a team of specialists for specific problems. My hypermobile EDS has landed me in the ER for cuts, sprains and broken bones my whole life, and I started seeing a slew of specialists decades ago - orthopedic surgeons, ENTs, neurologists, spine and pain specialists - many will also need gastroenterologists, cardiologists, etc. Educating ourselves - and our doctors - is clutch for getting good treatments and preventing those that don’t work. One great story is that my that extraordinary hand and arm surgeon developed an EDS knowledge base to treat other EDS patients after listening to my ( sad) stories 🙂