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I don't know what I have, but it's painful!

Chronic Pain | Last Active: Dec 12, 2023 | Replies (23)

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@terlato

I feel for you. I suffered for years with constant pain and the doctors never found anything wrong. They even told me to seek counseling. Finally I found a Neurologist that did listen. He did an EMG and said something wasn't right. He ordered genetic testing and I finally found out I have Hereditary Nerve Pressure Palsy, a very rare neurological disorder that most doctors never heard of. Pain management has helped with nerve blocks, injections and nerve alations. Most pain meds do not work because it is nerve pain. So I constantly use a TENS unit and heating pad and take a motrin. Which helps subside the pain. The only way to find out the source is getting genetically tested. I wish you the best and I truly know what you are going through.

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Replies to "I feel for you. I suffered for years with constant pain and the doctors never found..."

By any chance is the pain emanating just below your lower right rib cage? Just thinking just may be ACNES. Jeff