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Kidney cancer patients: Let's connect and introduce yourself
Kidney Cancer | Last Active: Dec 4 8:23am | Replies (245)Comment receiving replies
Hi @koke , I'm new to this. I was diagnosed just before Thanksgiving.
I have stage 4, metastatic, non-operable, RCC. A week ago I had a medi-port implanted and started immunotherapy . That evening I ended up in the hospital with sepsis. To bring my blood pressure up I received a blood transfusion and norepinephrine. I am feeling the best I have in months. I wonder how long it will last. My next immunotherapy treatment is 12/22. I'm concerned I will be sick for Christmas. My 5 year granddaughter is scared I won't be there. So many emotions.
Replies to "Hi @koke , I'm new to this. I was diagnosed just before Thanksgiving. I have stage..."
I am so sorry to hear how you are struggling. It sounds like you are getting top of the line care. But still the anxiety of the unknown can be daunting. I have been dx with a rare thyroid cancer, and was told on its return that it was terminal, 30 yrs ago. So much for terminal ! I
was dx with one rare form of renal cancer in my right kidney and then three months later another form in my left kidney. Both operated on and reconstructed. I have stage 4 CKD now and have had sepsis twice which affected my heart... and now have heart failure as well. I tell you all thus just to let you know I get it!
Best advice I can give from my perspective
Live you life each day. Fully and ... fully present!
Capture the good moments and give yourself grace in the hard moments.
Spend time with those you love anyway you can. Your legacy is what you are living out right now with those grandchildren. Tomorrow is not a guarantee for anyone really... it this moment we have .
Be in it! Present!
Sending you love. Prayers and big hugs
We all have differing journeys. One has this treatment and someone else has something different. Surgery, no surgery, chemo, no chemo. The pros, the cons. How in the world do you know what to do? You are correct “so many emotions.” I have heard, but never knew until now, what living moment to moment really meant. Each day brings new feelings. I so appreciate “lbrockme” words “I get it”. We all get it, that is what makes this site so meaningful. My prayer our collective prayers for healing, both emotional and physical are with each other. I feel the power of wisdom, help and understanding in each of you.
Blessings.
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It's problems that you unfortunately had that make this a very difficult decision of what to do, especially at my age. It seems there is no easy solution to the curse of cancer. Thanks for sharing this.