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Multiple Sclerosis (MS) - please introduce yourself
Brain & Nervous System | Last Active: Apr 9 9:54am | Replies (326)Comment receiving replies
In about 1999 I was in a bad car accident. I had many problems from it and an incredible pain in my left jaw that came and went. A jaw specialist found that my jaw joints were damaged. I had terrible pain. In 2002 an MD and DMD did a brain scan and told me I had M.S. I didn’t believe him and went to a different Maxillofacial surgeon, who removed my damaged jaw joints and replace them with my temporal flaps. That got rid of the pain for a couple years. The pain did come back. I tried many things to help the pain. In 2016 the same surgeon gave me titanium jaw joints. The bad pain was gone but I had some pain in my joints but it was a workable pain. In October of 2023 I had a return of the electric jolt pains of before the second jaw surgery. My neurologist thought it was trigeminal neuralgia and put me on oxcarbazepine 150 mg twice a day. It took care of about 90% of the pain. My Dr said sometimes that medicine will stop working. Any suggestions of other medicines in the future?
Replies to "In about 1999 I was in a bad car accident. I had many problems from it..."
Hi jemgr - I recently tried Botox for spasticity/nerve pain and it works. I looked up trigeminal neuralgia and it works for that also. Here is the link for the NIH article I found:
Botulinum toxin type-A (BTX-A) has been successfully utilized to treat trigeminal neuralgia.Sep 29, 2017
Botulinum toxin in the treatment of trigeminal neuralgia - NCBI
National Institutes of Health (.gov)
https://www.ncbi.nlm.nih.gov › articles › PMC5626289
I hope this works for you.
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First, I hope things get better and brighter for you! I've tried SO MANY medications...I'm on like 15 scripts now, give or take, which make it extremely hard to have a greater quality of life plus severe sleep deprivation due to pain and mental health issues.
I've tried oxcarbazepine (2) (150 mg) in the morning and at night but found that it wasn't helping as much as I expected plus it aided in my very low sodium level (which Neurologist) told me but PCP didn't know that and thought it's because of hydrochlorothiazide. Also, I have excruciating muscle spasms since starting oxcarb...so much so that I was recently admitted to the hospital *stayed 4 days. I've received steroids very IV (10x the amount that they give someone who is having an asthma attack for 4 days) and still not touching the muscle spasms. It even made my breathing labored when they come on (like contractions). I recently went back on Cymbalta (Duloxetine) at 60 mg per day. It's helping more than I expected but again still having muscle spasms. I suggest trying it. I've had Pregabalin and Gabapentin but they make me swollen. Perhaps, you could try one or both of those. Hope this helps!