Well, I had my first chemo treatment this past Thursday. I ate three light meals on Wednesday and I had a little coffee with cream and sugar and consumed 2 liters of water before chemo at 9 AM. The Zofran I received during chemo seemed to do its job well enough that I was able to eat a decent size lunch. I drank 3L more water over the course of the afternoon.
The evening wasn't so great. I had only been able to urinate once after chemo. (Yes, it was red from the adriamycin.) I had bloating, nausea, and vomiting. I hesitated to take the optional proclorperazine, thinking I would just tough it out. I took the bedtime regimen of the anti-emetics and stool softener that my oncologist prescribed, but it was a rough night. I did not urinate until 1:00 AM, at which time I got major relief from the nausea, vomiting, and bloating. My main concern up until then was whether my kidneys had stopped working.
On Friday, I communicated with one of the oncology nurses who said I should just monitor urine output and not to be concerned since I was able to go several times that morning. (I've never had kidney issues before; it makes me concerned for the next dose of chemo.)
Friday was actually a very good day. I took the regimen of anti-emetics that include prochlorperazine (as needed), ondansetron, olanzapine, and aprepitant (Emend).
Today (Saturday) has been marked by continuous queasiness and dizziness even though I took all the meds as prescribed. The only difference today is that I took the prochlorperazine around noon rather than in the morning. Keeping busy has helped keep my mind off the queasiness. I worked to get 3.5L of water down but have not been able to eat as much as I probably need, even though I am trying the small, frequent meals thing.
I'm hoping for less queasiness tomorrow if I take the prochlorperazine with the other anti-emetics in the morning.
Any suggestions from those with more experience?
How are feeling after your first treatment? Once I got started, my anxiety dropped fast, then it was just getting it done.
You can try alternating your anti nausea meds as they all kind of work a little differently. Take whatever you need to get through the worst days and don’t forget to drink and get that chemo flushed back out.
Did they give you odansetron/zofran? That one made hubby less sleepy than some of the others.
I just stayed away from acidic foods and drinks as much as possible, but once I started to get sores in my mouth, my doctor ordered a magic mouthwash that was compounded. I got two flavors but I could only stomach the banana flavor.
You only have to hold it in your mouth for a minute and it works amazingly well.
I hope you are getting enough rest, and able to eat enough.
Will you please call on me anytime, and also keep me posted on how you are feeling? 💕
Well, I had my first chemo treatment this past Thursday. I ate three light meals on Wednesday and I had a little coffee with cream and sugar and consumed 2 liters of water before chemo at 9 AM. The Zofran I received during chemo seemed to do its job well enough that I was able to eat a decent size lunch. I drank 3L more water over the course of the afternoon.
The evening wasn't so great. I had only been able to urinate once after chemo. (Yes, it was red from the adriamycin.) I had bloating, nausea, and vomiting. I hesitated to take the optional proclorperazine, thinking I would just tough it out. I took the bedtime regimen of the anti-emetics and stool softener that my oncologist prescribed, but it was a rough night. I did not urinate until 1:00 AM, at which time I got major relief from the nausea, vomiting, and bloating. My main concern up until then was whether my kidneys had stopped working.
On Friday, I communicated with one of the oncology nurses who said I should just monitor urine output and not to be concerned since I was able to go several times that morning. (I've never had kidney issues before; it makes me concerned for the next dose of chemo.)
Friday was actually a very good day. I took the regimen of anti-emetics that include prochlorperazine (as needed), ondansetron, olanzapine, and aprepitant (Emend).
Today (Saturday) has been marked by continuous queasiness and dizziness even though I took all the meds as prescribed. The only difference today is that I took the prochlorperazine around noon rather than in the morning. Keeping busy has helped keep my mind off the queasiness. I worked to get 3.5L of water down but have not been able to eat as much as I probably need, even though I am trying the small, frequent meals thing.
I'm hoping for less queasiness tomorrow if I take the prochlorperazine with the other anti-emetics in the morning.
Any suggestions from those with more experience?
Wow, you manage to stay hydrated way better than I did. I just couldn’t make myself drink that much, no matter what they said I should drink. Good for you.
Nausea was my biggest hurdle during these drugs. They did not have nearly as many nausea drugs as they have now. I hope they find something that works for you.
Our compounding pharmacy was definitely my friend, they made up a cream with 4 different drugs in it and I used a lot of it, and it helped.
I can’t honestly say anything but sleep completely eliminated it for me. The compazine just knocked me out for a while and the rest seemed to help.
How many rounds are you scheduled for?
My integrative medicine doctor recommended honey and that worked for me. Manuka honey has many good properties, but it’s expensive. I just used local honey at the time in combination with the salt and baking soda gargle.
The oncology nurses recommended 1/4 tsp salt and 1/2 tsp baking soda dissolved in 8 oz. (or 12 oz.?) water. I zap a little of it at a time to warm it up, then gargle and rinse. The rest stays in the refrigerator until I need it. This is helping so far, but I have only had one round of chemo. I'm told to expect mouth soreness to get worse with more doses of chemo.
I've read about mouthwashes from compounding pharmacies and will give that a try if necessary.
Wow, you manage to stay hydrated way better than I did. I just couldn’t make myself drink that much, no matter what they said I should drink. Good for you.
Nausea was my biggest hurdle during these drugs. They did not have nearly as many nausea drugs as they have now. I hope they find something that works for you.
Our compounding pharmacy was definitely my friend, they made up a cream with 4 different drugs in it and I used a lot of it, and it helped.
I can’t honestly say anything but sleep completely eliminated it for me. The compazine just knocked me out for a while and the rest seemed to help.
How many rounds are you scheduled for?
Four cycles of A/C and four cycles of T. (Two-week cycles.)
I am glad you are able to sleep well. The past five nights have been really tough for sleep. One of the oncology nurses says it is probably due to the dexamethasone (steroid) I had to take the first three days after the chemotherapy infusion. She says that I should start sleeping better with time and that I may just need a smaller dose next time. (I can't even remember what the dexamethasone is for.)
Four cycles of A/C and four cycles of T. (Two-week cycles.)
I am glad you are able to sleep well. The past five nights have been really tough for sleep. One of the oncology nurses says it is probably due to the dexamethasone (steroid) I had to take the first three days after the chemotherapy infusion. She says that I should start sleeping better with time and that I may just need a smaller dose next time. (I can't even remember what the dexamethasone is for.)
The dex is to help with side effects. I had that too, but I think the compazine which was for nausea but is a tranquilizer counterbalanced the effects, at least for a while. I am thinking of you as you navigate this treatment.
How are you feeling now? Sleeping? Eating well?
I had few side effects using a combination of Zofran and Promethazine which I didn't take until the 2nd day after chemo. However there are so many drug combinations in your infusion it's difficult to say what is working. Definitely keep your oncologist up to date, and keeping a diary on everything including water intake can be enlightening. I wish I had kept up with mine. As to mouth sores I was told to gargle with salt water which makes me gag. Instead I used Crest mouthwash making sure it was non-alcholic. As even this may be uncomfortable once you have irritation, I'd recommend Biotene as it's effective but mild. I brushed, and rinsed with mouthwash 2x daily and used a waterpik at night. I had zero sores. Good luck, and keep asking questions.
The dex is to help with side effects. I had that too, but I think the compazine which was for nausea but is a tranquilizer counterbalanced the effects, at least for a while. I am thinking of you as you navigate this treatment.
How are you feeling now? Sleeping? Eating well?
Thank you for asking, @auntieoakley . I cannot sleep and it is very frustrating. I have not slept well since starting chemo almost a month ago. My doctor suggested Benedryl, but it isn't helping. I've tried magnesium supplements, melatonin, and combination of Benedryl, melatonin, and magnesium. I am waiting for a reply from the doctor's office as I write this.
I envy those who are able to sleep through the nausea. I honestly have to ask if chemotherapy is even worth the side effects and risks.
Well, I had my first chemo treatment this past Thursday. I ate three light meals on Wednesday and I had a little coffee with cream and sugar and consumed 2 liters of water before chemo at 9 AM. The Zofran I received during chemo seemed to do its job well enough that I was able to eat a decent size lunch. I drank 3L more water over the course of the afternoon.
The evening wasn't so great. I had only been able to urinate once after chemo. (Yes, it was red from the adriamycin.) I had bloating, nausea, and vomiting. I hesitated to take the optional proclorperazine, thinking I would just tough it out. I took the bedtime regimen of the anti-emetics and stool softener that my oncologist prescribed, but it was a rough night. I did not urinate until 1:00 AM, at which time I got major relief from the nausea, vomiting, and bloating. My main concern up until then was whether my kidneys had stopped working.
On Friday, I communicated with one of the oncology nurses who said I should just monitor urine output and not to be concerned since I was able to go several times that morning. (I've never had kidney issues before; it makes me concerned for the next dose of chemo.)
Friday was actually a very good day. I took the regimen of anti-emetics that include prochlorperazine (as needed), ondansetron, olanzapine, and aprepitant (Emend).
Today (Saturday) has been marked by continuous queasiness and dizziness even though I took all the meds as prescribed. The only difference today is that I took the prochlorperazine around noon rather than in the morning. Keeping busy has helped keep my mind off the queasiness. I worked to get 3.5L of water down but have not been able to eat as much as I probably need, even though I am trying the small, frequent meals thing.
I'm hoping for less queasiness tomorrow if I take the prochlorperazine with the other anti-emetics in the morning.
Any suggestions from those with more experience?
Hello. Yes I jave that one.
I also am starting to jave sensitive gums..they are sore....
Did you experience this? If so, what did you to soothe your gums?
I just stayed away from acidic foods and drinks as much as possible, but once I started to get sores in my mouth, my doctor ordered a magic mouthwash that was compounded. I got two flavors but I could only stomach the banana flavor.
You only have to hold it in your mouth for a minute and it works amazingly well.
I hope you are getting enough rest, and able to eat enough.
Will you please call on me anytime, and also keep me posted on how you are feeling? 💕
Wow, you manage to stay hydrated way better than I did. I just couldn’t make myself drink that much, no matter what they said I should drink. Good for you.
Nausea was my biggest hurdle during these drugs. They did not have nearly as many nausea drugs as they have now. I hope they find something that works for you.
Our compounding pharmacy was definitely my friend, they made up a cream with 4 different drugs in it and I used a lot of it, and it helped.
I can’t honestly say anything but sleep completely eliminated it for me. The compazine just knocked me out for a while and the rest seemed to help.
How many rounds are you scheduled for?
My integrative medicine doctor recommended honey and that worked for me. Manuka honey has many good properties, but it’s expensive. I just used local honey at the time in combination with the salt and baking soda gargle.
Best wishes to you.
Cindy
The oncology nurses recommended 1/4 tsp salt and 1/2 tsp baking soda dissolved in 8 oz. (or 12 oz.?) water. I zap a little of it at a time to warm it up, then gargle and rinse. The rest stays in the refrigerator until I need it. This is helping so far, but I have only had one round of chemo. I'm told to expect mouth soreness to get worse with more doses of chemo.
I've read about mouthwashes from compounding pharmacies and will give that a try if necessary.
Four cycles of A/C and four cycles of T. (Two-week cycles.)
I am glad you are able to sleep well. The past five nights have been really tough for sleep. One of the oncology nurses says it is probably due to the dexamethasone (steroid) I had to take the first three days after the chemotherapy infusion. She says that I should start sleeping better with time and that I may just need a smaller dose next time. (I can't even remember what the dexamethasone is for.)
The dex is to help with side effects. I had that too, but I think the compazine which was for nausea but is a tranquilizer counterbalanced the effects, at least for a while. I am thinking of you as you navigate this treatment.
How are you feeling now? Sleeping? Eating well?
I had few side effects using a combination of Zofran and Promethazine which I didn't take until the 2nd day after chemo. However there are so many drug combinations in your infusion it's difficult to say what is working. Definitely keep your oncologist up to date, and keeping a diary on everything including water intake can be enlightening. I wish I had kept up with mine. As to mouth sores I was told to gargle with salt water which makes me gag. Instead I used Crest mouthwash making sure it was non-alcholic. As even this may be uncomfortable once you have irritation, I'd recommend Biotene as it's effective but mild. I brushed, and rinsed with mouthwash 2x daily and used a waterpik at night. I had zero sores. Good luck, and keep asking questions.
Thank you for asking, @auntieoakley . I cannot sleep and it is very frustrating. I have not slept well since starting chemo almost a month ago. My doctor suggested Benedryl, but it isn't helping. I've tried magnesium supplements, melatonin, and combination of Benedryl, melatonin, and magnesium. I am waiting for a reply from the doctor's office as I write this.
I envy those who are able to sleep through the nausea. I honestly have to ask if chemotherapy is even worth the side effects and risks.