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Has anyone had IVIG Infusions for Neuropathy?
Neuropathy | Last Active: May 29 7:12pm | Replies (422)Comment receiving replies
Hi Harley 22,
What is your diagnostic and what other meds or treatment have you taken that did help you? .y diagnosis is idiopathic neuropathy and IVIG is not doing it. Prednisone and a lot 2 hours daily exercise is returning me to walk
Replies to "Hi Harley 22, What is your diagnostic and what other meds or treatment have you taken..."
How much prednisone? My idiopathic SFN is also prednisone-responsive but my docs & I have kept daily dose at 10 mg/day with infrequent, brief burst (50 mg/day tapering by 5-10 mg/day for stress-induced (mechanical, emotional, exertional) severe flares of neuropathic pain).
IVIG helped drain my $$$ but did nothing to my daily pain.
Nels
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My diagnosis is CIDP basically.
Numbness and tingling in my feet, unable to balance without a cane or walker.
Numbness now in my right hand, cannot hold things even a pen.
I’m trying to use my left hand whenever I can, but doesn’t always work.
My lips and cheeks are also numb, and have been like this for past 11 yrs.
I’ve been thru all the testing like EMGs, spinal taps, bone marrow biopsies, on all the meds like Gabapentin, Lyrica,etc.
I have an elevated protein level in my spinal fluid, cause unknown.
I’ve done and had all the meds and treatments that’s done for CIDP and nothing has helped.
Right now I’m at a standstill.
My neurologist offered me another infusion med called Retuximab, but my insurance won’t cover it and it’s very expensive.