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Tapering prednisone and stress

Polymyalgia Rheumatica (PMR) | Last Active: Dec 21, 2023 | Replies (25)

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@ddmo

i too was tapering slowly off Pred. (3years) i was down to 3mg a month. was doing well until...i had a relapse and had to go on a very disappointing 15mg for two weeks then 10....5.... next visit. I too have a lot of stress in my life which I am sure contributes to this challenging disease ( condition, I believe I incurred from Covid Vax and booster. It ruined my immune system) I was wondering, has your Rheumy suggested Actemra Infusion.? That is what mine rec to decrease pred completely. Of course after reading the drug info I am , to put it mildly, fearful. Any thoughts?
Thanks
Dianne

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Replies to "i too was tapering slowly off Pred. (3years) i was down to 3mg a month. was..."

Interesting that this happened after your Covid Vax and booster I became inflicted with PMR about 10 days after my second Shingkex vaccination. I suffered a lot of pain for weeks before my doctor put me on 50mg of prednisone- for 1 week 1 have been tapering off rather rapidly in my opinion- 10mg a week - I am currently on 10mg and I feel the pain coming back in legs, groin and shoulders - unfortunately my doctor is away for the holidays - I was hoping to go to 15mg to ease the increasing inflammation but not sure if I should, I haven’t been given any info on Actemra Infusion- I may be too early in this dose for consideration.